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Old 01.10.2014, 10:22
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Re: Gluten free/lactose free diet. Will it ever get easier?

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I thought most reputable gastroenterologists had decided "gluten sensitivity" is just a myth. Gluten intolerance, however, in the form of coeliac disease is very much a genuine disorder. Don't let yourselves be confused by the difference.
I've been suffering from the former for years. It started after glandular fever but took a couple of years to work out what was going wrong.
It's not coeliac - I had an endoscopy to show that.

My wife's a biologist and a sceptic of everything and even double blind tests have always had a positive result.

But yes, even after all these years, I still feel like a fraud.
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Old 01.10.2014, 10:30
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Re: Gluten free/lactose free diet. Will it ever get easier?

It also bothers me that credibility is lent by the krankenkassen to these pseudo-scientific practices, despite plenty of evidence to the contrary. Gluten sensitivity is a fad.

I'd advise to stop experimenting with pop medicine and go where the cold hard facts are, e.g. your neighborhood gastro specialist. Depending on your KK model, you may need to be referred by your HMO. This could be the symptom of something more serious and as always with these things, early diagnosis is best.

Good luck.
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Old 01.10.2014, 10:33
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Gluten sensitivity is a fad.

I'd advise to stop experimenting with pop medicine and go where the cold hard facts are
Give me a piece of bread sometime and I can show you some cold, hard facts - no specialists necessary!
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Old 01.10.2014, 10:38
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Re: Gluten free/lactose free diet. Will it ever get easier?

warm soft facts?
  #25  
Old 01.10.2014, 12:39
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Re: Gluten free/lactose free diet. Will it ever get easier?

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It also bothers me that credibility is lent by the krankenkassen to these pseudo-scientific practices, despite plenty of evidence to the contrary. Gluten sensitivity is a fad.
There is no biological marker for it but that doesn't mean that one won't be found in the next few years.

Which, let's face it, is more likely than finding proof of a God, or ghosts etc etc in the next few years.
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Old 01.10.2014, 23:54
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Re: Gluten free/lactose free diet. Will it ever get easier?

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It also bothers me that credibility is lent by the krankenkassen to these pseudo-scientific practices, despite plenty of evidence to the contrary. Gluten sensitivity is a fad.
I am not sure what you mean. The health insurance gives us nothing for our son's special diet, and he has coeliac diagnosed by endoscopy.

What bothers me is the backlash against this so-called gluten-fad has an impact on my son, whose genuine medical condition may not be taken seriously. He also has type 1 diabetes, and suffers similar discrimination because of people's awareness of type 2 diabetes. It also bothers me that people do go 'gluten free' without being properly tested. If you thought you might have breast cancer, would you go on a 'cancer busting diet' without getting a breast scan and seeing a specialist ? And just hope for the best ?

My daughter also has some sort of digestive problem and also had an endoscopy. She has multiple allergies that have been confirmed by blood test and skin testing as well as trial and error, and may well be 'allergic' to things internally as well as externally - who knows - but she got an 'inconclusive' result with abnormality of the lining of the small intestine without a specific disorder. So we know something is 'wrong' but the doctor was unable to confirm what it could be - allergies ? pre-coeliac changes ? something else ?

Either way I do not wish for the take-home message to be 'gluten free diets are a fad' but rather 'please see your doctor and get a referral to a gastro-enterologist for proper diagnosis and treatment.
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Old 02.10.2014, 00:09
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Re: Gluten free/lactose free diet. Will it ever get easier?

OP, just a few thoughts. Try to limit either lactose or gluten for a month, but not both. Otherwise you won't really be able to tell what the culprit is. It's possible getting rid of both is what you need, but start with one. See how it goes, then try the other.

Same for anything else you might be sensitive to. Test one at a time if you can, and allow enough time to get a good idea of how your body reacts. And go ahead with colon and endoscopy. It will give you a baseline reading from which your doctors can work in the future. Feel better soon!
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Old 02.10.2014, 09:12
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Gluten free/lactose free diet. Will it ever get easier?

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I would like to ask if there is anyone here who is on gluten free or lactose free diet.
It looks like I have IBS and although my tests didn't indicate any lactose or gluten intolerance my sister ( who is a doctor by the way) recommended to stay of products containing gluten for at least two weeks to see how my body is responding to it.
I think my doctor mentioned this test too but I ignored it when my tests came out negative.

How have you been tested? Both celiac disease and lactose intolerance can be tested conclusively (H2 test for lactose intolerance and gastroscopy for celiac disease). There's no blood test for lactose intolerance - unless you did the H2 test (and you'd know, this one takes 3 hours and normally involves a lot of poking if they also monitor the glucose absorption levels), you haven't been tested properly and the blood tests for celiac disease aren't accurate.

So first, get tested properly before you mess up your entire nutrition / risk suffering malnutrition (e.g. calcium deficiency) and suffer needlessly. Soy products aren't exactly great, either (often are of dubious origins, may not be GMO free, contain estrogens etc.).

If you've had a negative O2 test and the biopsy also came back negative, you're not lactose intolerant and don't have celiac disease and you don't need to change your nutrition. If you have constant digestion problems, you might want to get checked for other allergies and intolerances (e.g. fructose) and for Morbus Crohn etc.

If it's IBS and things improve although you got negative results after having been properly tested, it's likely the placebo effect helping you, which is often the case for IBS as that particular ailment involves the central nervous system.
If it ends up being IBS, coping with stress situations will be the solution for you - look into yoga and other calming techniques.

peter

Ps: My son has celiac disease and I'm lactose intolerant (completely, I have no lactase reaction left)
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Old 02.10.2014, 09:13
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Re: Gluten free/lactose free diet. Will it ever get easier?

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I am not sure what you mean. The health insurance gives us nothing for our son's special diet, and he has coeliac diagnosed by endoscopy.
Our Doctor (Luzern Kantonsspital, Gastroenterologist) insisted that we sign up our daughter for assistance through AHV/AVS when she was diagnosed with Celiac disease. We don't need social assistance but as he insisted, we did it anyways. Every year we get something like 700 CHFs to help offset the cost of the additional expense of GF foods. This will go up as she gets older (she is 6 now).
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Old 02.10.2014, 09:15
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Maybe so, but what happens if someone's blood test comes back negative but they get ill after eating anything containing gluten? Should they just shrug, write it off as a myth and endure several hours of unpleasant symptoms, or should they use their common sense and avoid gluten?

The blood tests are useless for celiac disease. They only give you some general pointers and are highly inaccurate. If you have the suspicion you get a reaction from gluten, you need to schedule a biopsy in three months time and eat normally for that period of time. If you eat gluten free, the biopsy results will be messed up.

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Our Doctor (Luzern Kantonsspital, Gastroenterologist) insisted that we sign up our daughter for assistance through AHV/AVS when she was diagnosed with Celiac disease. We don't need social assistance but as he insisted, we did it anyways. Every year we get something like 700 CHFs to help offset the cost of the additional expense of GF foods. This will go up as she gets older (she is 6 now).

Good to know, thanks - we haven't applied for this yet. I just know that we can make tax deductions for this.

I find it somewhat curious that the IV would pay, though - celiac disease isn't congenital in most cases and as such is a disease rather than a genetic disorder. The IV usually doesn't pay if you have a disease.

Last edited by 3Wishes; 28.09.2015 at 21:15. Reason: merging consecutive replies
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Old 02.10.2014, 09:32
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Re: Gluten free/lactose free diet. Will it ever get easier?

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The blood tests are useless for celiac disease. They only give you some general pointers and are highly inaccurate. If you have the suspicion you get a reaction from gluten, you need to schedule a biopsy in three months time and eat normally for that period of time. If you eat gluten free, the biopsy results will be messed up.
I understand that. However, products which contain gluten make me so ill that there is no chance whatsoever that I will ever eat them again, making a biopsy useless.

It's good advice for others, though.
  #32  
Old 02.10.2014, 10:29
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Re: Gluten free/lactose free diet. Will it ever get easier?

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I understand that. However, products which contain gluten make me so ill that there is no chance whatsoever that I will ever eat them again, making a biopsy useless.
Although, for example, if, in the future, scientists showed that coeliac disease caused other conditions which were treatable and existed irrespective of whether you were having gluten in your diet or not, wouldn't you want to know?

Having said that, you've probably have been off gluten for so long that you'd need to be back on it for a long time for an endoscopy to show any damage.
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Old 02.10.2014, 10:41
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Re: Gluten free/lactose free diet. Will it ever get easier?

Black coffee is much better once you get used to it, as long as it's good quality.Migros fair trade best in my opinion.
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Old 02.10.2014, 17:15
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Re: Gluten free/lactose free diet. Will it ever get easier?

My husband is no gluten plus nothing from a cow (ie dairy and beef) plus a few other things (like raw peppers). I also eat nothing from a cow (can't eat dairy but it's easier just to be the same as I don't like red meat anyway). We can have sheep's or goat's milk though (or camel if you can find it).

As others have suggested, easiest is to focus on what you can have.

If you want to be sure, you'd need to do an elimination diet. Generally advised is to start eating just rice, chicken and pears (yep, really interesting but people rarely have allergies to them), then introduce a new food or two every week to find out what makes you ill. If fructose is the problem, pears won't be a good idea...
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Old 02.10.2014, 17:21
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Gluten free/lactose free diet. Will it ever get easier?

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We can have sheep's or goat's milk though (or camel if you can find it).

Which means you're not lactose intolerant but have a cow milk allergy - as there's lactose in all kinds of milk, including goat's milk, you wouldn't be able to have that either, otherwise.

Last edited by 3Wishes; 02.10.2014 at 18:38. Reason: fixed quoting
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Old 02.10.2014, 18:00
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Re: Gluten free/lactose free diet. Will it ever get easier?

I haven't eaten gluten in almost a year due to Celiac disease. My doctor wanted to do an endoscopy, which I found to be a waste of time. I didn't need my intestines violated, and a bad reaction to Propofol to prove to myself that I had a food allergy. Either way, I had the stupid endoscopy so medical science can stamp a diagnosis on me even though it has not at all changed my eating behaviour.

What I've discovered is that gluten-free foods (that are not naturally gluten-free) can still cause me non-gastrointestinal reaction. So keep that in mind. I have successfully weaned myself off bread, pasta and all that stuff.

I have dairy, however, I'm currently drinking some coffee with coconut fat in it in lieu of cream/milk. Quite good actually. I'm also told butter and marscarpone are okay if you have an allergy to either Lactose or Casein since there's so little protein in them (it's all fat!). Though, I haven't personally researched it, so I'm not entirely sure.

If you're ever in Zurich, Hiltl and Kerala both have gluten (and dairy) indicators on their menus. Also, the steakhouses are an awesome gluten-free alternative
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Old 02.10.2014, 18:37
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Which means you're not lactose intolerant but have a cow milk allergy - as there's lactose in all kinds of milk, including goat's milk, you wouldn't be able to have that either, otherwise.
Well yes. That's why we don't have beef - it's a bovine protein allergy. However, in practise there tends to be more lactose-free produce than sheep/goat's dairy produce (at least in Germany).

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I'm also told butter and marscarpone are okay if you have an allergy to either Lactose or Casein since there's so little protein in them (it's all fat!).
Might be true but I know from personal experience that butter remains a problem. Maybe that means it's a bovine fat problem though...

Last edited by 3Wishes; 02.10.2014 at 18:54. Reason: merging successive posts
  #38  
Old 02.10.2014, 23:39
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Re: Gluten free/lactose free diet. Will it ever get easier?

My boyfriend has started making paleo recipes since we both adhere to a gluten-free diet. It just occured to me that paleo recipes would likely work for you too since you're cutting out dairy and gluten.

Gluten-free, extremely low-sugar brownies (it's not sweet though, so don't be disappointed. Consider replacing the 100% chocolate with the Lindt 90%)

This is his favourite site: http://www.marksdailyapple.com/primal-paleo-recipes/
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Old 03.10.2014, 10:06
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Generally advised is to start eating just rice, chicken and pears

I'm allergic to pears
  #40  
Old 03.10.2014, 11:43
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Re: Gluten free/lactose free diet. Will it ever get easier?

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I'm allergic to pears
Sounds like rice and chicken then. Should be ok with turkey too if you fancy a change!
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