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Old 04.10.2014, 05:59
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Maybe so, but what happens if someone's blood test comes back negative but they get ill after eating anything containing gluten? Should they just shrug, write it off as a myth and endure several hours of unpleasant symptoms, or should they use their common sense and avoid gluten?

For the time being, anybody affected has no choice then to avoid stuff containing Gluten/Lactose, BUT science should trace for methods to solve their problem. This is not a short-term matter but a long term one
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Old 04.10.2014, 08:31
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Maybe so, but what happens if someone's blood test comes back negative but they get ill after eating anything containing gluten? Should they just shrug, write it off as a myth and endure several hours of unpleasant symptoms, or should they use their common sense and avoid gluten?

Unfortunately the blood tests can be false-negative. Were you eating substantial amounts (two slices of bread per day) of gluten products before the test?

There is also a gene test which is fairly new, which can test whether you carry the gene but not if you have the disease.

In my daughter's case, given her history, we pushed for an endoscopy even though she tested negative, and the endoscopy showed abnormality but coeliac.

At this point, if you have gone gluten free, and found great relief, and are happy to stay gluten-free for the rest of your life, going back on gluten (and getting sick) just to get the endoscopy may not make any sense to you.

Were you diagnosed/tested by a gastroenterologist or by a GP?

Personally, and I have said this many times, given our own experience, I would push for a referral to a gastroenterologist.

My brother and sister both eat gluten-free. I have no doubt they have Coeliac, but my brother refuses to go back on gluten for the diagnosis to be done properly, and my sister fell pregnant just when she was going through the diagnosis process, and chose to go gluten free immediately (with massive improvement to her overall health and digestion), due to pregnancy and breastfeeding and now has to decide whether to go back to gluten to do the testing properly. After 2 years gluten-free it will be hard for her to decide to make herself sick just to do the test which she is certain will be positive.

Coeliac does tend to run in families.

My son (coeliac positive on blood test and endoscopy) reacts horrifically to gluten... He is accidentally glutened maybe once a year, usually when we travel and the food is different, and it's not fun at all...
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Old 04.10.2014, 08:58
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Unfortunately the blood tests can be false-negative. Were you eating substantial amounts (two slices of bread per day) of gluten products before the test?

There is also a gene test which is fairly new, which can test whether you carry the gene but not if you have the disease.

In my daughter's case, given her history, we pushed for an endoscopy even though she tested negative, and the endoscopy showed abnormality but coeliac.

At this point, if you have gone gluten free, and found great relief, and are happy to stay gluten-free for the rest of your life, going back on gluten (and getting sick) just to get the endoscopy may not make any sense to you.

Were you diagnosed/tested by a gastroenterologist or by a GP?

Personally, and I have said this many times, given our own experience, I would push for a referral to a gastroenterologist.

My brother and sister both eat gluten-free. I have no doubt they have Coeliac, but my brother refuses to go back on gluten for the diagnosis to be done properly, and my sister fell pregnant just when she was going through the diagnosis process, and chose to go gluten free immediately (with massive improvement to her overall health and digestion), due to pregnancy and breastfeeding and now has to decide whether to go back to gluten to do the testing properly. After 2 years gluten-free it will be hard for her to decide to make herself sick just to do the test which she is certain will be positive.

Coeliac does tend to run in families.

My son (coeliac positive on blood test and endoscopy) reacts horrifically to gluten... He is accidentally glutened maybe once a year, usually when we travel and the food is different, and it's not fun at all...

Right this week I realized that I have an allergy against Fanta-Orange. As allergy against oranges (NOT Mandarines/Clementines/Grapefruit/Lemon) is in the family I will be very careful and possibly consult a specialist
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Old 05.10.2014, 21:42
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Re: Gluten free/lactose free diet. Will it ever get easier?

In the early stages of a gluten reaction after rather foolishly taking a couple of bites of rehpfeffer earlier this evening. I usually avoid food with thick sauces, but I honestly had no idea. Since checked some recipes, and sure enough they all call for 2 tablespoons of flour.

I've been avoiding gluten for ten years now, and incidents like this are becoming less and less frequent as I've begun to recognise what's safe to eat and what isn't, but it's still possible to get caught out.

Not looking forward to the next 24 hours. It's going to be... an adventure.

(I think I can safely give that biopsy a miss, too!!)
  #45  
Old 06.10.2014, 03:43
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Re: Gluten free/lactose free diet. Will it ever get easier?

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In the early stages of a gluten reaction after rather foolishly taking a couple of bites of rehpfeffer earlier this evening. I usually avoid food with thick sauces, but I honestly had no idea. Since checked some recipes, and sure enough they all call for 2 tablespoons of flour.

I've been avoiding gluten for ten years now, and incidents like this are becoming less and less frequent as I've begun to recognise what's safe to eat and what isn't, but it's still possible to get caught out.

Not looking forward to the next 24 hours. It's going to be... an adventure.

(I think I can safely give that biopsy a miss, too!!)

I this past week had a glass of Fanta Orange and as a result a swollen upper lip for more than a day. It possibly was the result of something they use for Fanta. I will be very careful anyway
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Old 06.10.2014, 10:45
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Re: Gluten free/lactose free diet. Will it ever get easier?

Nailed it

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Old 06.10.2014, 11:08
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Another common cause for diffuse gastric inflammation, and thus for food intolerance, is electromagnetic radiation. You may find yourself exposed to various EM fields, caused by mobile phones, WIFI, DECT, Bluetooth and the more. You may try to evade such sources of radiation at work or at your sleeping place for some time.

Good luck
Don't be bloody ridiculous.
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Old 06.10.2014, 11:29
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Re: Gluten free/lactose free diet. Will it ever get easier?

You probably don't need to be on that gluten-free diet...

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Old 06.10.2014, 15:02
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Re: Gluten free/lactose free diet. Will it ever get easier?

http://www.special-bites.com - they do lots of cakes and sweet foods that are gluten free.

I also went on a gluten free diet for 3months, it was mainly to help detox my body from a lifestyle of eating lots of meat, and I felt it worked well for me. My energy levels felt a lot higher after the first month.

Now I am not on a gluten free diet, but eat a lot less meat and not so many carbs (even when I eat carbs I stick with complex carbs). Wholegrain pitta's are lovely.

good luck
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Old 06.10.2014, 15:07
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Re: Gluten free/lactose free diet. Will it ever get easier?

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I also went on a gluten free diet for 3months, it was mainly to help detox my body from a lifestyle of eating lots of meat

Now I am not on a gluten free diet, but eat a lot less meat
With respect... are you sure you understand what gluten is?
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Old 06.10.2014, 15:14
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Right this week I realized that I have an allergy against Fanta-Orange. As allergy against oranges (NOT Mandarines/Clementines/Grapefruit/Lemon) is in the family I will be very careful and possibly consult a specialist
Fanta-Orange contains lots of sugar and artificial flavors (Geschmacksverstärker) and only 5% orange juice.

Drink a half-glass of orange juice and see if you have allergy to it.
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Old 06.10.2014, 15:22
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Where should I go shopping for gluten free products?
And finally, could someone recommend tasty/easy gluten free recipes?
I know I can eat potatoes, rice and quinoa which I love so it's a good start.

All help will be much appreciated
I found these products to have a very poor, artificial taste. At one point I thought I had gluten intolerance, but since I eat a very small piece of whole grains bread, no pasta, no cakes (sadness here), no crackers or biscuits, I feel much better.
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Old 06.10.2014, 15:25
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Re: Gluten free/lactose free diet. Will it ever get easier?

Twenty hours on and things are finally beginning to calm down again. It was a very rough night and a pretty dodgy morning - the worst I've ever experienced.

As I said before, I've got pretty good at avoiding this, so it's a rare occurrence - rare enough that I can't really track patterns - but do any of you find that your reactions are getting worse each time?
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Old 06.10.2014, 15:51
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Re: Gluten free/lactose free diet. Will it ever get easier?

unfortunately I think people's gluten problems deteriorate with age
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Old 06.10.2014, 16:25
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Old 06.10.2014, 16:29
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Don't be bloody ridiculous.
This made me chuckle at work and I still need to pas my Probezeit!
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Old 06.10.2014, 16:59
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Too many chives. It may look nice but it won't work.
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Old 06.10.2014, 17:04
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Re: Gluten free/lactose free diet. Will it ever get easier?

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ouch, can someone please tell me how can I edit my post? I made two typos
Keep posting -- after a while you'll become the proud owner of your very own edit button. More info here: Anatomy of a post: all those buttons and links, explained.
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Old 06.10.2014, 17:31
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Too many chives. It may look nice but it won't work.
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Old 06.10.2014, 18:00
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Re: Gluten free/lactose free diet. Will it ever get easier?

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Too many chives. It may look nice but it won't work.
100%. Any chives on tournedos rossini is a travesty. But it does look nice.
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