Go Back   English Forum Switzerland > Help & tips > Family matters/health
Reply
 
Thread Tools Display Modes
  #1  
Old 04.01.2011, 02:41
Junior Member
 
Join Date: Mar 2008
Location: basel
Posts: 34
Groaned at 0 Times in 0 Posts
Thanked 0 Times in 0 Posts
montra has no particular reputation at present
info Down Syndrome in Basel

Hi

I just gave birth baby with Down Syndrome. She is 4 days old and i live in Basel. If anyone have info about support group or have any contact for that or community for this special kid. I would love to meet or talk with some parent that have this special kid. It will help me so much.
Thanks all.
Reply With Quote
  #2  
Old 04.01.2011, 02:48
jrspet's Avatar
Forum Legend
 
Join Date: Jul 2007
Location: Quaint Wädenswil, Zürich, CH
Posts: 8,153
Groaned at 29 Times in 22 Posts
Thanked 7,036 Times in 3,912 Posts
jrspet has a reputation beyond reputejrspet has a reputation beyond reputejrspet has a reputation beyond reputejrspet has a reputation beyond reputejrspet has a reputation beyond reputejrspet has a reputation beyond repute
Re: info Down Sydrome in Basel

Some tips here:

Down's Syndrome / Trisomy 21

Downs Syndrome in Switzerland

and a site worth visiting ..

http://www.down-syndrom.ch/poems.htm

by Edna Massimilla

A meeting was held quite far from earth.
It’s time again for another birth,
Said the angels to the Lord above,
This special child will need much love.
His progress may seem very slow.
Accomplishments he may not show.
And he’ll require extra care,
From the folks he meets way down there.
He may not run or laugh or play,
His thoughts may seem quite far away.
In many ways he won’t adapt
and he’ll be known as handicapped.
So let’s be careful where he’s sent.
We want his life to be content.
Please Lord, find me parents who
will do a special job for you.
They will not realize right away
The leading role they’re asked to play.
But with this child sent from above
Come stronger faith and richer love.
And soon they’ll know the privilege given,
In caring for this gift from Heaven.
Their precious charge, so meek and mild,
Is Heaven’s Very
Special Child.


__________________
404 – punoɟ ʇou ɹoʇɐɹǝpoɯ
Reply With Quote
The following 10 users would like to thank jrspet for this useful post:
  #3  
Old 04.01.2011, 04:24
Carter's Avatar
Member
 
Join Date: Feb 2007
Location: Bondi Beach, Australia
Posts: 124
Groaned at 1 Time in 1 Post
Thanked 48 Times in 18 Posts
Carter has earned some respectCarter has earned some respect
Re: info Down Syndrome in Basel

Hello and welcome to your baby girl! I've sent you an email with as much info as I could think of xxxxx
Reply With Quote
The following 4 users would like to thank Carter for this useful post:
  #4  
Old 04.01.2011, 05:23
Oldhand's Avatar
Forum Legend
 
Join Date: Apr 2006
Location: Zürich
Posts: 3,832
Groaned at 20 Times in 19 Posts
Thanked 6,093 Times in 1,907 Posts
Oldhand has a reputation beyond reputeOldhand has a reputation beyond reputeOldhand has a reputation beyond reputeOldhand has a reputation beyond reputeOldhand has a reputation beyond reputeOldhand has a reputation beyond repute
Re: info Down Syndrome in Basel

Congratulations on the birth of your baby girl, you may be a little more dazed as other new mums, considering your baby girls diagnosis but I hope you can both snuggle up for a little while and let the EF find you some sources for info and support. xxx
Reply With Quote
The following 3 users would like to thank Oldhand for this useful post:
  #5  
Old 04.01.2011, 07:05
Newbie 1st class
 
Join Date: Dec 2010
Location: Basel
Posts: 16
Groaned at 0 Times in 0 Posts
Thanked 1 Time in 1 Post
Bapa has no particular reputation at present
Re: info Down Syndrome in Basel

In my prayers. It is going to be okay. Xxxxxxx bapa
Reply With Quote
  #6  
Old 04.01.2011, 16:33
Junior Member
 
Join Date: Mar 2008
Location: basel
Posts: 34
Groaned at 0 Times in 0 Posts
Thanked 0 Times in 0 Posts
montra has no particular reputation at present
Re: info Down Syndrome in Basel

Thank you so much.
Reply With Quote
  #7  
Old 05.01.2011, 17:45
suzybg's Avatar
Senior Member
 
Join Date: Sep 2010
Location: Edinburgh/ Basel
Posts: 488
Groaned at 1 Time in 1 Post
Thanked 266 Times in 153 Posts
suzybg has earned the respect of manysuzybg has earned the respect of manysuzybg has earned the respect of many
Re: info Down Syndrome in Basel

This isn't in Basel, but one of my best friends in Amercia has a 4 year old little girl with Down Syndrome. She is beautiful and loving and doing so well. My friend has a blog and I think reading it may be helpful to you. I'm sure if you contact her through your blog she will be glad to give you advice.

http://networkedblogs.com/cCpN1
Reply With Quote
  #8  
Old 21.03.2012, 05:26
Newbie
 
Join Date: Mar 2012
Location: Canada
Posts: 2
Groaned at 0 Times in 0 Posts
Thanked 0 Times in 0 Posts
Lee75 has no particular reputation at present
Re: info Down Syndrome in Basel

Hello I gave birth to a daughter with Down Syndrome 2 years ago. The thing is we are from Canada where we have Medicare and the services she receives are paid by the government except for speech therapy.
My husband has been offered a job in Basel and we are trying to make the best decision for our family. I was hoping you would be able to provide us some additional information about Basel and the services they offer for children with DS.
Where could we receive physical therapy and ergo therapy?
What about speech therapy?
Does the government provide a social worker or educator to the family?
Do the daycares and schools integrate kids with Down Syndrome?
Are there services for respite?
I have written to the down syndrome association but no one has responded to my emails. Your help and knowledge are greatly appreciated!
Reply With Quote
  #9  
Old 21.03.2012, 08:06
Rangatiranui's Avatar
Forum Veteran
 
Join Date: Nov 2007
Location: Baden region
Posts: 2,040
Groaned at 9 Times in 8 Posts
Thanked 2,193 Times in 987 Posts
Rangatiranui has a reputation beyond reputeRangatiranui has a reputation beyond reputeRangatiranui has a reputation beyond reputeRangatiranui has a reputation beyond reputeRangatiranui has a reputation beyond reputeRangatiranui has a reputation beyond repute
Re: info Down Syndrome in Basel

Hi there Lee,

Welcome to the forum.

You could try asking these guys: http://www.hps-bs.ch/

Here is also a link to an english speaking meet-up group for mums in Basel.
http://www.opendoorbasel.ch/

There are probably quite a few around, as there are many mothers with young kids, from Basel in this site.
Reply With Quote
  #10  
Old 21.03.2012, 10:56
ecb's Avatar
ecb ecb is offline
Forum Veteran
 
Join Date: Jun 2010
Location: out n about - it's summer!
Posts: 2,145
Groaned at 8 Times in 8 Posts
Thanked 3,425 Times in 1,285 Posts
ecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond repute
Re: info Down Syndrome in Basel

Quote:
View Post
Hello I gave birth to a daughter with Down Syndrome 2 years ago. The thing is we are from Canada where we have Medicare and the services she receives are paid by the government except for speech therapy.
My husband has been offered a job in Basel and we are trying to make the best decision for our family. I was hoping you would be able to provide us some additional information about Basel and the services they offer for children with DS.
Where could we receive physical therapy and ergo therapy?
What about speech therapy?
Does the government provide a social worker or educator to the family?
Do the daycares and schools integrate kids with Down Syndrome?
Are there services for respite?
I have written to the down syndrome association but no one has responded to my emails. Your help and knowledge are greatly appreciated!
Dear Lee

You are right to be concerned about the funding for treatment for your daughter.

Funding for medical therapy (as opposed to special educational needs) are met by a mixture of the federal disability insurance scheme, the gemeinde or Canton where you live and your health insurance with each body (in my experience) trying to push responsibility for treatment and therapy onto another.

My child does not have Downs but does benefit from a number of therapies you mention. I am also friends with a mum in our village who has a son the same age as mine with Downs and we occasionaly find time to drink a coffee during which our main conversation centres on the madness of getting funding for the treatment that our children so patently need.

Special schooling is funded by the Canton but to the extent that these schools incorporate medical therapies into the school day, these are generally funded by the disability insurance. Health insurance generally funds your medical visits/diagnostic etc but not ongoing ambulatory therapies (because they refer you to the disability benefit system). In BL, speech therapy is paid for by Gemeinde but usually only commences at school age. My friend has just won an almost year long battle to get the Gemeinde to fund speech therapy for the year before her boy goes to school. We gave up and funded it privately.

Disability insurance is very hard to obtain for minors who are not born in CH. The basic rule is that the parent should have been making full contributions to the AHV system (federal insurance system) for at least 12 months before the event giving rise to your claim occurred - in our case it being classed as a congenital defect, this actually means the child's birth. I believe this would also be the case for you too, so, unbelievably, practically excluding you from benefits under the disability insurance scheme. For children under the age of 20 you need to claim under one of a few hundred specified statutory grounds but also unbelievably Downs Syndrome is not cited as a statutory ground in its own right; instead you have to claim for individual symptoms - eg: your child has difficulties walking and with general gross motor skills so requires physio therapy and acqua therapy eg. your child has difficulties swallowing and requires special equipment for food preparation and feeding - another claim. Exhausting.

You can check this by contacting the IV (disability insurance) office in Baselstadt - but you will probably need to be a competent German speaker to be sure you have understood. I would start by asking simply if your child would be covered by this scheme.

Furthermore the availability of any therapy in English is hugely restricted (no speech therapy available in Basel area in English) so for the most part you will have to accept that your child's therapy and treatment will be in German. We have lucked out with a special needs play therapist who is a good French speaker (we speak French at home) but it was just pure luck.

The most frustrating thing we have found over the last 4 years is that no one is really able to answer how these 3 different systems for funding interact and where the responsibility of one stops and the other starts. It may be that this is written down somewhere and is clear but I have not managed to discover this. So my advice is qualified by a huge warning to try to get someone who speaks fluent German (if you do not) to take up this matter on your behalf. Perhaps someone within your husband's company would assist?

All best wishes to you. This is a hard decision.

Edit: I have just realised you are in Montreal and speak French. Did you know that Delémont in Canton Jura (French speaking) is an easy 30 minute commute from central Basel? Here at least you would avoid all issues with language.

Last edited by ecb; 21.03.2012 at 20:12. Reason: Extra info re French speaking part
Reply With Quote
The following 9 users would like to thank ecb for this useful post:
  #11  
Old 21.03.2012, 11:51
Newbie 1st class
 
Join Date: Oct 2011
Location: Basel
Posts: 24
Groaned at 5 Times in 2 Posts
Thanked 9 Times in 5 Posts
cork has earned some respectcork has earned some respect
Re: info Down Syndrome in Basel

http://www.independent.ie/opinion/an...r-2334557.html

Congratulations on your baby.

The link is to an article written by the Dad of a baby with trisomy 21 too. It is an amazing article and I hope you like it.
Reply With Quote
  #12  
Old 21.03.2012, 15:14
Forum Legend
 
Join Date: Oct 2009
Location: la cote
Posts: 2,777
Groaned at 15 Times in 9 Posts
Thanked 2,154 Times in 1,220 Posts
runningdeer has a reputation beyond reputerunningdeer has a reputation beyond reputerunningdeer has a reputation beyond reputerunningdeer has a reputation beyond reputerunningdeer has a reputation beyond repute
Re: info Down Syndrome in Basel

I can confirm what ecb said with downs syndrome being excluded as a diasability in itself. My daughter was in physical therapy at a young age due to a problem with her neck, and I got to know the physical therapist quite well. She said that unfortunately there are a lot of downs syndrome children who could benefit from physical therapy but don't because the system excludes them. Only if their parents pay can they often get the treatment that may help them. Sorry if that is not what you are expecting, but better to be informed in advance and make decisions accordingly.
Reply With Quote
This user would like to thank runningdeer for this useful post:
  #13  
Old 21.03.2012, 15:18
swisspea's Avatar
Forum Legend
 
Join Date: May 2008
Location: From one side of lake Zurich to the other...
Posts: 5,506
Groaned at 33 Times in 22 Posts
Thanked 5,034 Times in 2,432 Posts
swisspea has a reputation beyond reputeswisspea has a reputation beyond reputeswisspea has a reputation beyond reputeswisspea has a reputation beyond reputeswisspea has a reputation beyond reputeswisspea has a reputation beyond repute
Re: info Down Syndrome in Basel

Breastfeeding a baby with down syndrome can be difficult due to low muscle tone and also if they have a heart problem (some, but not all, babies born with DS have a heart problem)...

For future reference (the OP is over 12 months ago) - here's a link:
https://www.breastfeeding.asn.au/bf-info/down
Reply With Quote
  #14  
Old 21.03.2012, 15:26
ecb's Avatar
ecb ecb is offline
Forum Veteran
 
Join Date: Jun 2010
Location: out n about - it's summer!
Posts: 2,145
Groaned at 8 Times in 8 Posts
Thanked 3,425 Times in 1,285 Posts
ecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond reputeecb has a reputation beyond repute
Re: info Down Syndrome in Basel

Lee - here is a link to a charitable organisation that is in contract with Baselland and Baselstadt for the provision of therapy (ergo/physio/play therapy) to children of pre school age.

My son makes use of their facilities and the treatment he gets here (art and play therapy) is funded by the Canton.

The therapists are (in my book) complete Angels and you could do no better than ringing up and trying to speak to someone to ask generally about the care and provision for Downs children. They run regular playgroups and in the one in our town, 4 of the 6 children have Downs.

At least two of the staff working out of Liestal speak very proficient (although they would not agree!) English. They will not have detailed information about funding but have a very good idea about general provision for disabled children.

http://www.ptz-bl.ch/index.php?id=37

Fellow EF members - the organisation above is a charity and does wonderful wonderful work (life saving as many of the parents would say - this parent certainly would). If you are thinking for any reason of making a charitable donation in the next few weeks, please bear them in mind. The demand for their services and expertise constantly outstrips the funding available.

Ok. Moving away from the soap box!
Reply With Quote
  #15  
Old 23.03.2012, 04:59
Newbie
 
Join Date: Mar 2012
Location: Canada
Posts: 2
Groaned at 0 Times in 0 Posts
Thanked 0 Times in 0 Posts
Lee75 has no particular reputation at present
Re: info Down Syndrome in Basel

Thank you for all the details. Greatly appreciated. I can't tell you how much time you ave just saved me in researching. All things need to be taken into account before we make such a big family decision.
Reply With Quote
  #16  
Old 23.03.2012, 11:47
Junior Member
 
Join Date: Nov 2010
Location: Basel
Posts: 69
Groaned at 0 Times in 0 Posts
Thanked 33 Times in 16 Posts
Magpie is considered knowledgeableMagpie is considered knowledgeableMagpie is considered knowledgeable
Re: info Down Syndrome in Basel

Hi

I was googling for some other info and I happened to come across an English speaking support group in Switzerland for downs syndrome. It's part of the stork:

http://www.thestork.ch/

The support group has an email address where you can contact them:

Downs Syndrome
SupportGroups@TheStork.chThis e-mail address is being protected from spambots. You need JavaScript enabled to view it


I have no idea how old this info is and if they still exsist, but it may be helpful to try and contact them.

Best wishes!
Reply With Quote
  #17  
Old 31.01.2015, 01:57
Newbie
 
Join Date: Jan 2015
Location: neuchatel
Posts: 1
Groaned at 0 Times in 0 Posts
Thanked 0 Times in 0 Posts
mriagr has no particular reputation at present
Re: info Down Syndrome in Basel

Hi. My family is facing the same decision as yours a couple of years ago. My husband has been offered a job in Neuchatel and we have an 18 month daughter with DS. We live in Spain where motor, language and early stimulation is paid by the government. I have also been daunted by some of the comments on the lack of support and schooling. What were your experiences? Did you eventually move to Basel? Any recommendation and advice would be greatly appreciated.
Reply With Quote
Reply




Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Down's Syndrome / Trisomy 21 Carmen Family matters/health 6 13.12.2010 19:59
Pre-menstrual syndrome loumaca67 Family matters/health 42 16.02.2010 10:32
Downs Syndrome in Switzerland esto Other/general 37 30.08.2009 17:27
social opportunities for 23 yr old with Downs Syndrome JLou Introductions 1 27.08.2009 19:20
Tourette's Syndrome in an open plan office RolandRB Complaints corner 22 22.02.2008 14:13


All times are GMT +2. The time now is 18:00.


Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2016, Jelsoft Enterprises Ltd.
LinkBacks Enabled by vBSEO 3.1.0