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  #21  
Old 13.02.2015, 10:15
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Re: DS Autistic Spectrum disorder

Dear Swisspea,
I really apologize for my inappropriate behaviour.
Didn't want to hurt neither you nor the swiss nation in general.
Again, sorry.
Really ashamed
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  #22  
Old 13.02.2015, 10:33
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Re: DS Autistic Spectrum disorder

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Dear Swisspea,
I really apologize for my inappropriate behaviour.
Didn't want to hurt neither you nor the swiss nation in general.
Again, sorry.
Really ashamed
Hang in there Niceyes, we all have our moments of despair.
As far as I understood the Swiss professionals weren't too helpful, and I can confirm you're not the only one. My OH's boss had to move back to their native country (he said they are more advanced in these regards) because, attention!, even though his wife is a child therapist they still had problems to convince the teaching staff from kindergarten that the child suffers from a form of autism. The child did get some special therapy hours, but they didn't really know how to approach him (who is a bright child, btw)...the wife was so frustrated she couldn't cope anymore.
I feel for you, but if you're not going to move anytime soon, insist and insist and insist to get the proper help.
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  #23  
Old 13.02.2015, 13:11
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Re: DS Autistic Spectrum disorder

I think the time has come for us to take a deep breath and take this whole deal with a grain of salt.

I am an obsessive compulsive and know what it like to overcome what to other people is not even worth a thought. Overcoming spending 5 minutes making sure the door is locked properly and other such things has given me a different perspective on the kinds of problems that other people have to deal with and the associated stress involved.

Conversations with my own family has revealed to me all the dramas that I created when I was young as a result of OCD. Dissorders are very stressfull do deal with, not only for the person with the dissorder but also the whole family. What we just experienced from Niceeyes is simply a classic example of exactly that.

Folks.... Dont pull the dagger out and throw it back. Instead exercise tolerance towards something that some of us simply do not understand.

Lets help each other and forgive our misstakes.

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  #24  
Old 13.02.2015, 13:45
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Re: DS Autistic Spectrum disorder

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I do not want my son to be the second Einstein. I just want to hear MUMMY out of him.
You know, it is very painful when you can't hear your child's voice.
Yes, but how will you feel knowing that it comes simply from an enforced behavior rather than occurring naturally? My son will stop what he is doing, make eye contact and say 'Hello'. But it is without meaning for him - he just knows that is what is expected.
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Old 13.02.2015, 14:51
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Re: DS Autistic Spectrum disorder

Jack, I laughed out loud for your on- line diagnosis. Well, you are experienced and I guess you know better.
In one way or another we are all crazy.
Have a nice day, you made mine, thanks
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Old 13.02.2015, 17:54
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Re: DS Autistic Spectrum disorder

Nice eyes, you WILL hear Mummy from him - it just takes time. It is only now that my son is 7 that I appreciate 2 things that have made a great difference to how we think about the future. The first is that these children need time - they will get round to doing things but in their own order and at their own pace. The second is that your child's progress will never be linear. You can feel like you have ground to a stultifying halt for months then all of a sudden milestones rush in in the space of a few days.

We were desperate for our son to say yes and no (because it would just help everyday life if he could answer simple questions) and also to wave (yes that was a selfish one - just couldn't understand why he didn't wave or look pleased to see us after a whole day at school). But suddenly one day (aged 5!) both things arrived at once. A couple of weeks ago he even started nodding and shaking his head for yes and no! Wonders will never cease!

The more your child learns to communicate and reveals himself to you, the more confidence you will gain that he will be able to do these things you wish for, and the more you will be able to relax and get on with enjoying the little boy you have. But it takes time, for him to learn these skills and for you too to believe that it will happen. But it will. xx
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  #27  
Old 13.02.2015, 18:09
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Re: DS Autistic Spectrum disorder

Dear ECB,
You again find the words of wisdom and confidence.
Thank you.
I really appreciate your kindness.
And my husband and I say thank you that you gave us a valuable information about kids with special needs in CH yahoo group.
That was very helpful.
Maybe someday we would be able to drink a bottle of French wine and eat foie gras together.
With all my respect.
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Old 13.02.2015, 18:57
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Re: DS Autistic Spectrum disorder

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Jack, I laughed out loud for your on- line diagnosis. Well, you are experienced and I guess you know better.
In one way or another we are all crazy.
Have a nice day, you made mine, thanks
Cheers Niceyes!

Sooner or later I had to reveal that one to our community. I am sure for some members it explains a lot about me. hehe.

Niels Bohr: "When you have all the misstakes that can be made in the most narrowest of fields then you may consider yourself to be an expert."

Now open a nice bottle of the good juice and enjoy your weekend.
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Old 14.02.2015, 00:53
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Re: DS Autistic Spectrum disorder

this is really a tough but lovely and touching thread. honestly nice eyes you are going thru it and things will sting you and those same stings will provide solace in the next instant. thankfully there are those here who are well versed, well experienced and well meaning. take a deep breath and let it come and go. i wish you all the best of luck it's a tough time and, i imagine, tougher still dealing with all the details and detours that life here, esp in this case, has to offer.

stay strong, even when you aren't feeling strong- tears and frustration don't mean you aren't strong- they just show you are feeling something. as has been said, you are the best advocate for your child, but you need support and shoulders and advice. good on you for reflecting and pushing through it. i wish you all the best. and bravo to all those who offer first hand experience and advice. in a place where family and friends are far- it's a precious and necessary impetus for getting your child what they need and one of the most important things, in mho, of this forum.
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  #30  
Old 14.02.2015, 01:35
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Re: DS Autistic Spectrum disorder

Nice eyes you sound like a really nice person, so your child is lucky to have you. In my opinion the US is most up-to-speed on Autism, however it is not something that you can throw money at, there have been a lot of false leads. There is still so much that is not known about Autism so that now there are labels like 'Asperger's-like behaviours'. While I think ABA is the best approach, I would not nail the Autism label on a child, never to be removed. Every child is an individual and has their own personality, it is a wide spectrum. The best teachers (and you will be his primary teacher/therapist/advocate) get to know the child's personality and just use whatever works and does no harm.
Make sure that you get breaks, don't feel guilty about child-free downtime, you need to stay strong. I am a camera freak, I would get nannycams and watch as a detached observer, your child's behaviour on their own and while with others. You may need to warn others to expect cameras in the house.
Also, I would not discount the Swiss approach entirely.
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Old 15.02.2015, 16:11
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Re: DS Autistic Spectrum disorder

sorry to hear that your child is diagnosed with ASD. i think early diagnosis is better than a late one, early intervention can make all the difference. i am sure you already heard this a million times, but i think the isolated, lonely lifestyle we live in the western world contributes to the problem. children often are alone, interact only with their parents until they start kindergarten. social interaction is key for proper development. as a child who grew up in a non-western country, i was surrounded with extended family, and i was literally on the street at age 3, "dealing" with other kids of my age. these nasty kids probably knocked the sense into me, otherwise i could have turned "a bit different". being surrounded with extended family and other kids in a non-regulated play environment could help a lot for proper development, but i dont know how this could be achieved here in CH
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Old 24.05.2015, 09:55
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Re: DS Autistic Spectrum disorder

The only reason they prefer to recommend and pay for Heilpädagogische
Früherziehung and Logopädie sh&t 1 hour per week is just because ABA therapy is minimum 20 hours per week and turns to be really expensive for this country.
So, they would rather lock autistic kids at homes than integrate them into society.
Such a shame for this rich country.
And, by the way, ABA works.
So, please, all those parents with newly diagnosed kids , please, do the ABA sessions. Please, do not waste the valuable time doing ergotherapy and other stuff.
ABA works, it needs your time 24 /7, hell of a money , your nerves but you will be admired how it will change your little boy.

Last edited by Niceyes; 24.05.2015 at 11:35.
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