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  #21  
Old 28.11.2009, 08:36
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Re: Interesting new approach to treating multiple sclerosis (MS)

From BBC News... Multiple Sclerosis Blood Blockage Theory Tested It is just fantastic to see major news organizations picking up this important story and reporting on the developments...

Also, this interesting video...

Jack
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  #22  
Old 28.11.2009, 11:19
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Re: Interesting new approach to treating multiple sclerosis (MS)

Yes a very interesting "dynamic" now that most people have access to the Internet and how information can travel very quickly within concerned groups (in this case MS sufferers).

The Canadian MS Society had to do an about face when they were confronted by all of the media and public pressure to follow up on the Italian research. At first they were very dismissive then they had to back off. As posted on the linked website yesterday, the Canadian MS Society has now agreed to fund research in Canada to test the procedure.

In one of the comment sections of the Globe & Mail article, someone was comparing this to the orthodoxy about the cause of stomach ulcers. They were commonly though (by all the top researchers) to be caused by stress etc. Then an Australian doctor (not even a "specialist", what was he thinking ) proposed that ulcers might be caused by a bacteria instead. Boy did he get sh*t on for that idea. Well, we all know the end to that story.
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  #23  
Old 28.11.2009, 11:23
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Re: Interesting new approach to treating multiple sclerosis (MS)

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Yes a very interesting "dynamic" now that most people have access to the Internet and how information can travel very quickly within concerned groups (in this case MS sufferers).

The Canadian MS Society had to do an about face when they were confronted by all of the media and public pressure to follow up on the Italian research. At first they were very dismissive then they had to back off. As posted on the linked website yesterday, the Canadian MS Society has now agreed to fund research in Canada to test the procedure.

In one of the comment sections of the Globe & Mail article, someone was comparing this to the orthodoxy about the cause of stomach ulcers. They were commonly though (by all the top researchers) to be caused by stress etc. Then an Australian doctor (not even a "specialist", what was he thinking ) proposed that ulcers might be caused by a bacteria instead. Boy did he get sh*t on for that idea. Well, we all know the end to that story.
Exactly...and now it is time to put pressure on the Swiss MS society...
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  #24  
Old 28.11.2009, 11:45
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Re: Interesting new approach to treating multiple sclerosis (MS)

This story reminds me of how in the late 80s a couple of scientists discovered that stomach ulcers are, in most cases, caused by a specific bacteria.

It wasn't until 10 years later that it became the regular treatment.

What I love about the MS story, is that a) it's obviously a far more serious disease, b) if this works, it's relatively simple to cure c) and makes an ENORMOUS difference to so many people!
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Old 28.11.2009, 14:31
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Re: Interesting new approach to treating multiple sclerosis (MS)

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From BBC News... Multiple Sclerosis Blood Blockage Theory Tested It is just fantastic to see major news organizations picking up this important story and reporting on the developments...

Also, this interesting video...

Jack
I've got a contact who works for "The One Show" (UK current affairs programme) who I've emailed to ask if they can do a feature on it. I really hope they'll cover it as it's on at 7pm UK time so lots of people watch it.

My friend is seriously considering taking Tysabri. He's had MS for 8 years which he's managed mainly with the "best bet diet" and vitamins. Unfortunately he had a bad attack earlier this year which has scared him enough to let his neurologist convince him to try this drug. The side effects of Tysabri sound horrendous (1 in 1000 chance of developing PML). Unfortunately he has tried so many alternative treatments that he thinks Tysabri could be the answer. He's made up his mind and I don't think he even looked at the Canadian article I sent him. Wish there was some way I could convince him but I don't think he wants to speak to me at the moment! He's fed up with people telling him what he should be doing and I can appreciate this. I'm hoping that if Dr Zamboni's discovery gets enough coverage in the UK, he might eventually find out what it's all about through other means.
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  #26  
Old 28.11.2009, 15:10
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Re: Interesting new approach to treating multiple sclerosis (MS)

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I've got a contact who works for "The One Show" (UK current affairs programme) who I've emailed to ask if they can do a feature on it. I really hope they'll cover it as it's on at 7pm UK time so lots of people watch it.

My friend is seriously considering taking Tysabri. He's had MS for 8 years which he's managed mainly with the "best bet diet" and vitamins. Unfortunately he had a bad attack earlier this year which has scared him enough to let his neurologist convince him to try this drug. The side effects of Tysabri sound horrendous (1 in 1000 chance of developing PML). Unfortunately he has tried so many alternative treatments that he thinks Tysabri could be the answer. He's made up his mind and I don't think he even looked at the Canadian article I sent him. Wish there was some way I could convince him but I don't think he wants to speak to me at the moment! He's fed up with people telling him what he should be doing and I can appreciate this. I'm hoping that if Dr Zamboni's discovery gets enough coverage in the UK, he might eventually find out what it's all about through other means.
Thanks for your efforts and I wish your friend the best of luck with his chosen treatment. Having ms is bad enough physically, but the mental toll can eventually be overwhelming for many patients... I really hope the medical community realizes this new approach offers hope...something that is sorely missing in many current treatments - and perhaps an important ingredient as well...
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  #27  
Old 01.12.2009, 10:45
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Re: Interesting new approach to treating multiple sclerosis (MS)

Here is an excellent forum for discussing the new MS Liberation treatment: http://www.thisisms.com/forum-40.html Many of the contributors are either having the procedure done very soon, or they are in the early planning stages...interesting stuff...
Jack
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  #28  
Old 20.12.2009, 19:01
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Re: Interesting new approach to treating multiple sclerosis (MS)

The latest news regarding this treatment from The Buffalo News

The positive momentum is fantastic...
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