Go Back   English Forum Switzerland > Help & tips > Family matters/health  
Reply
 
Thread Tools Display Modes
  #21  
Old 16.03.2011, 12:57
Leni's Avatar
Forum Veteran
 
Join Date: May 2010
Location: Sunny Solothurn
Posts: 942
Groaned at 8 Times in 6 Posts
Thanked 765 Times in 406 Posts
Leni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond repute
Re: Epilepsy

Thank you - yes, I went to my GP and she has referred me to the neurologist.

She is a good doctor and has even phoned me at home!!
Thanks to everyone here, too; it really helps to feel supported
Reply With Quote
The following 4 users would like to thank Leni for this useful post:
  #22  
Old 16.03.2011, 13:00
Longbyt's Avatar
Forum Legend
 
Join Date: Apr 2008
Location: ZH
Posts: 8,111
Groaned at 57 Times in 53 Posts
Thanked 12,980 Times in 4,732 Posts
Longbyt has a reputation beyond reputeLongbyt has a reputation beyond reputeLongbyt has a reputation beyond reputeLongbyt has a reputation beyond reputeLongbyt has a reputation beyond reputeLongbyt has a reputation beyond repute
Re: Epilepsy

Thanks for coming back to let us know.
Hope all goes smoothly from now on.
Reply With Quote
  #23  
Old 20.06.2011, 11:07
Leni's Avatar
Forum Veteran
 
Join Date: May 2010
Location: Sunny Solothurn
Posts: 942
Groaned at 8 Times in 6 Posts
Thanked 765 Times in 406 Posts
Leni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond repute
Re: Epilepsy

Update : Had an EEG this morning and got the all clear!!



My doctor said that there were no longer signs of epilepsy on the scan and even gave me milder medication. I can do all the normal things again.
Today is a really good day and I am HAPPY!!!



Thanks to all on EF for their concern and help.
Reply With Quote
The following 4 users would like to thank Leni for this useful post:
  #24  
Old 20.06.2011, 11:27
Newbie 1st class
 
Join Date: Jan 2011
Location: Zurich
Posts: 28
Groaned at 0 Times in 0 Posts
Thanked 5 Times in 5 Posts
MurrayIreland has earned some respectMurrayIreland has earned some respect
Re: Epilepsy

You mentioned that physical exertion can trigger a fit for you. Make sure you are very well hydrated during and after any physical exercise. Dehydration can be a big factor in triggering fits.

Also, there is a range of medication for epilepsy so it's worth spending some time researching various types and discussing the pros and cons with your neurologist, and perhaps even trying out different ones for a few months at a time until you find the one that suits you the best.

Best of luck and I hope you're feeling better!
Reply With Quote
This user would like to thank MurrayIreland for this useful post:
  #25  
Old 09.09.2011, 17:14
Leni's Avatar
Forum Veteran
 
Join Date: May 2010
Location: Sunny Solothurn
Posts: 942
Groaned at 8 Times in 6 Posts
Thanked 765 Times in 406 Posts
Leni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond repute
Re: Epilepsy

Hi Everyone

Just to update, am changing meds because my hair has been falling out on Depakine and it is a battle to keep weight off. Am monitoring my diet carefully and exercising 3 times a week.
My neurologist is very good and has told me that these are common side effects of medication based on valproic acid.
So now I have started on Keppra and Lamictal (which can cause skin rashes and even death ) so, you can imagine, I am a little nervous. Also because of the change over - which I know can be a bit precarious.

Has anyone ever had these two drugs before? Any experiences?
__________________

Reply With Quote
  #26  
Old 09.09.2011, 17:57
Forum Veteran
 
Join Date: May 2005
Location: Zurich
Posts: 741
Groaned at 68 Times in 46 Posts
Thanked 374 Times in 215 Posts
Focus has earned some respectFocus has earned some respect
Re: Epilepsy

Type these drugs in your search and you will find all kinds of information.
Reply With Quote
  #27  
Old 09.09.2011, 18:02
Forum Veteran
 
Join Date: May 2005
Location: Zurich
Posts: 741
Groaned at 68 Times in 46 Posts
Thanked 374 Times in 215 Posts
Focus has earned some respectFocus has earned some respect
Re: Epilepsy

Something else to consider

http://www.eeginfo.com/research/epilepsy_main.html
Reply With Quote
This user would like to thank Focus for this useful post:
  #28  
Old 09.09.2011, 18:03
Leni's Avatar
Forum Veteran
 
Join Date: May 2010
Location: Sunny Solothurn
Posts: 942
Groaned at 8 Times in 6 Posts
Thanked 765 Times in 406 Posts
Leni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond repute
Re: Epilepsy

Of course I did that but there is a lot of conflicting stuff. Looking for personal experiences from members.
Reply With Quote
  #29  
Old 09.09.2011, 23:01
Sky's Avatar
Sky Sky is offline
Forum Legend
 
Join Date: Apr 2009
Location: Somewhere special far away
Posts: 4,206
Groaned at 60 Times in 43 Posts
Thanked 6,695 Times in 2,517 Posts
Sky has a reputation beyond reputeSky has a reputation beyond reputeSky has a reputation beyond reputeSky has a reputation beyond reputeSky has a reputation beyond reputeSky has a reputation beyond repute
Re: Epilepsy

If you're having difficulty with weight and hair, it's important to get your thyroid checked (simple blood test) even if it is a known side effect of the medication.
Hope you feel better
Reply With Quote
This user would like to thank Sky for this useful post:
  #30  
Old 09.09.2011, 23:29
Leni's Avatar
Forum Veteran
 
Join Date: May 2010
Location: Sunny Solothurn
Posts: 942
Groaned at 8 Times in 6 Posts
Thanked 765 Times in 406 Posts
Leni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond reputeLeni has a reputation beyond repute
Re: Epilepsy

Thank you Sky.

I have had these tests done (last year) and all was ok with my thyroid.
In 2 weeks they are re-testing bloods, liver functions etc.
I know I have low iron levels and this can cause hair loss but not to this extent.
I am lucky in that I have very thick hair and it is not really noticeable, but the mess at home and the handfuls coming out when washing it is quite distressing.
Reply With Quote
  #31  
Old 01.04.2020, 15:29
Newbie
 
Join Date: Apr 2020
Location: Zurich
Posts: 1
Groaned at 0 Times in 0 Posts
Thanked 1 Time in 1 Post
epiliga has no particular reputation at present
Re: Epilepsy

Hi everybody, just wanted to let you all know that the Swiss League Against Epilepsy offers information in English as well. This includes the most recent issue, coronavirus and epilepsy, as well as more general topics. https://www.epi.ch/en/

This is not a commercial post as we work nonprofit and the information is free of charge. Take care!
Reply With Quote
This user would like to thank epiliga for this useful post:
Reply




Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Epilepsy treatment Vugluscr Family matters/health 2 30.12.2010 20:23
Epilepsy - no more driving jbrady Transportation/driving 20 22.12.2010 22:06


All times are GMT +2. The time now is 20:58.


Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.
LinkBacks Enabled by vBSEO 3.1.0