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Old 14.03.2011, 11:14
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Epilepsy

Does anyone have any experience of epilepsy seizures?
If so, what drugs do you take and have you experienced any particular side effects?

Thanks.
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Old 14.03.2011, 11:24
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Re: Epilepsy

My boyfriend's 9 year old child does, and he has become overly aggressive. The doctor says it is "quite normal" as a side effect but sometimes he is hard to tolerate. The dosage is being reduced every 6 months. We hope he can be totaly taken off, it looks like he has the kind of epilepsy that he could 'grow out'. Another side effect is that he seems to sleep a little less, getting up at 6 AM every day like an alarm clock.
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Old 14.03.2011, 11:26
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Re: Epilepsy

It's better to address your questions to the nearest Psychiatry clinic, I wouldn't even discuss this with a GP, one needs a good shrink, so the clinic will refer you.

In the meantime, there is a specific forum online that might be informative for you, Swiss Epilepsy Centre should also be a good source of data, so should International League against Epi. I would ask those for a refferal for a good doc. Meds depends on a loads of stuff, age, other problems, etc. A change of lifestyle is important, I'd stay away from booze, coffee, etc.
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Old 14.03.2011, 13:13
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Re: Epilepsy

Something to consider before getting on medications for epilepsey.

http://www.epilepsyhealth.com/index.html
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Old 14.03.2011, 13:20
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Re: Epilepsy

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It's better to address your questions to the nearest Psychiatry clinic, I wouldn't even discuss this with a GP, one needs a good shrink, so the clinic will refer you.

In the meantime, there is a specific forum online that might be informative for you, Swiss Epilepsy Centre should also be a good source of data, so should International League against Epi. I would ask those for a refferal for a good doc. Meds depends on a loads of stuff, age, other problems, etc. A change of lifestyle is important, I'd stay away from booze, coffee, etc.
Or first a GP, then a neurologist referral. You can't rely on someone else's experiences with particular drugs, as there are many kinds of epilepsy requiring different approaches. Good luck!
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Old 14.03.2011, 18:17
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Re: Epilepsy

It is frightening the confusion which reigns over this condition - even in the medical world!!
The meds and their side effects frighten me - would like to try someting else.

My trigger is physical exhertion and emotional stress; had lots of both recently, but how can you avoid that in a normal life??
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Old 14.03.2011, 18:52
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Re: Epilepsy

My uncle had epilepsy and it's true it is quite difficult to balance.
He did manage to lead a normal and happy life nevertheless the medications had a effect on his lifestyle and he always had to be very careful in regards to foods, drinks and any other medications.

Hope you are well.
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Old 14.03.2011, 19:22
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Re: Epilepsy

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It's better to address your questions to the nearest Psychiatry clinic, I wouldn't even discuss this with a GP, one needs a good shrink, so the clinic will refer you.
I respectfully disagree, Epilepsy is not a psychiatric illness but a neurological one so would recommend to go to a GP first and then a neurologist.
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Old 14.03.2011, 19:29
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Re: Epilepsy

Quite right. Have been referred to a good neurologist.
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Old 14.03.2011, 19:58
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Re: Epilepsy

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Quite right. Have been referred to a good neurologist.
I hope he/she manages to find a good balance with your medication. Don't be afraid to go back until your symptoms are manageable without bad side effects. A lot of this is trial and error, in treatment of epilepsy as in some other diseases.

Also, make sure to take vacations. At least we get a nice vacation package here is Switzerland; it's true you can't escape stress and emotional exhaustion, but you can try to minimize them.
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Old 14.03.2011, 20:18
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Re: Epilepsy

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I respectfully disagree, Epilepsy is not a psychiatric illness but a neurological one so would recommend to go to a GP first and then a neurologist.
Yeah, thanks, a friend was actually seeing both, forgot about the neurologist. Somehow it seems to be paired back home, the neuro and psych depts, I don't know why.

Good luck to OP.
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Old 14.03.2011, 20:48
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Re: Epilepsy

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Something to consider before getting on medications for epilepsey.
waaaaait a minute now.. only a doctor knows. No info for the internet will make a diagnosis ! Only a doctor can help Leni.

My uncle survived for many many years because he was diagnosed properly. He had regular seizures from the age of 3 onwards. It's only when my mother found her brother the correct help and the correct medication was he able to live seizure-free for the rest of his life.

The right meds can make a difference.
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Old 15.03.2011, 11:20
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Re: Epilepsy

Thank you all for your contributions.

Am feeling strangely weird today - and extremely tired - don't know if it is a longer lasting effect of the fit.
Anyway, it is pretty uncomfortable and I appreciate your helpful comments and support.

H
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Old 15.03.2011, 11:41
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Re: Epilepsy

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Thank you all for your contributions.

Am feeling strangely weird today - and extremely tired - don't know if it is a longer lasting effect of the fit.
Anyway, it is pretty uncomfortable and I appreciate your helpful comments and support.

H
Yes Leni it is, go rest and get an appointment with the neruologist soon *hugs* and best wishes
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Old 15.03.2011, 21:24
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Re: Epilepsy

I'm in a bit late on this, but am glad you have got a good referral for a neurologist. My brother has epilepsy, and the root of it really does differ for people, and so therefore so does the treatment. Don't be freaked out by the medication..sometimes (depending on root cause, of course) medication is not necessary; in ones that it is, the medication may have side effects, but so can any drug we take. Fortunately, the side effects are only in a minority, which is awful for those people, of course, but shouldn't dominate your thoughts - concentrate on stressing less

Epilepsy can be scary, especially if you have not grown up with it, but it is more common than you think...and if you can get help of tackling the root causes, it will make things even easier.

Rest up and all the best.
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Old 16.03.2011, 08:27
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Re: Epilepsy

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Thank you all for your contributions.

Am feeling strangely weird today - and extremely tired - don't know if it is a longer lasting effect of the fit.
Anyway, it is pretty uncomfortable and I appreciate your helpful comments and support.

H
Hey Leni - what you're probably experiencing is a post-ictal state happens after the seizure and can last from minutes to hours. Mine include confusion, extreme exhaustion - I can sleep for 12 hours, difficulty writing (write letters instead of numbers, write letters out of order etc)... My seizures started as an adult as the result of a brain injury and the medication I take returned me to a functioning person - totally saved me Don't be too afraid of the medications - if you need them they are there for a reason. There may be trial and error and - for me- the side effects were bothersome but went away after a while and now I don;t notice them. PM me if you have any questions or want any support. Best of luck with your neurology appointment. I just moved to Zurich and am seeing a new neurologist here at the end of the month - I hope she's good!
Sue
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Old 16.03.2011, 09:34
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Re: Epilepsy

Yes - I think you are right.

Still feeling strange this morning, though, and everything around me seems unfamiliar.
No appetite and feeling upset.
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Old 16.03.2011, 10:53
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Re: Epilepsy

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It's better to address your questions to the nearest Psychiatry clinic, I wouldn't even discuss this with a GP, one needs a good shrink, so the clinic will refer you.

In the meantime, there is a specific forum online that might be informative for you, Swiss Epilepsy Centre should also be a good source of data, so should International League against Epi. I would ask those for a refferal for a good doc. Meds depends on a loads of stuff, age, other problems, etc. A change of lifestyle is important, I'd stay away from booze, coffee, etc.
I don't think this is a very good idea you need to contact medical / neurological hospital departments, and speak to medical doctors who specialise is neurological disorders and epilepsy, a psychiatrist will be no help whatsoever.
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Old 16.03.2011, 11:44
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Yes - I think you are right.

Still feeling strange this morning, though, and everything around me seems unfamiliar.
No appetite and feeling upset.
You've got a referral to a neuro, right? Or have you at least spoken to your regular doctor? When's your appointment? You might feel better if you could see someone as soon as possible. I've never gone through this personally, but I know how frightening (on top of just feeling bad) things like this can be. Please take care.

e.
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Old 16.03.2011, 11:47
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Re: Epilepsy

I think just a vocab confusion from Musikchick. Perso I'd always go through my GP as I think a good GP needs to have an overall holistic view of each patient - s/he also might be able to recommend a particularly good specialist, rather than pick one out of a hat.

Leni thinking of you and hope you soon feel 'yourself' again + get to see a specialist soon. xx
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