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Old 18.08.2011, 09:46
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Mesothelioma - Cancer caused by exposure to Asbestos

A few days ago, my father in law (66 years old) was diagonsed with Mesothelioma cancer. We are all still reeling from the shock, and trying to come to terms with this news. Until this week we were all optimistic, mainly because he is a extremely fit person, who is almost never sick. Two weeks ago he hiked up a mountain, with a climbing a difference of 1000m! This week he is lying in hospital and is confronted with the possibility of removing half of his lung!!

All that I have researched about Mesothelioma has been well, not very encouraging. Right now, we do not know which type of Mesothelioma it is, or if it has attacked any other organ linings.
Six years ago he lost his wife after 10year battle with cancer, and now the thought of the same destiny lies before him. The images of a skeletal woman reduced to nothing still are with all of us.

I, myself have just come to terms with my own mother's death, I have only recently accepted her swift departing, which left many unsaid words of love. And now, another sentence has been passed........
Yet another day dawns, we awake, the clouds pass over us, and the day turns into night, 'life' continues, no matter the pain that engulfs us.

Has Mesothelioma cancer touch your lives as well? I am searching for more than medical facts........
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Old 18.08.2011, 10:01
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

I don't.

But I want to offer you my best wishes and comfort. It must be a very difficult time for your family right now and I hope you'll find answers.

Hugs,

Nil
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Old 18.08.2011, 10:05
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Pather, first of all best of luck to your dad and your whole family. I'm afraid I don't know anything about that specific cancer but I found this site

http://www.cancerforums.net/index.php

very helpful when dealing with my own cancer ( prostate )

it's not a medical site just an open forum with people discussing their own problems and issues.

I hope it helps

best,

greg
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Old 18.08.2011, 10:06
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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A few days ago, my father in law (66 years old) was diagonsed with Mesothelioma cancer. We are all still reeling from the shock, and trying to come to terms with this news. Until this week we were all optimistic, mainly because he is a extremely fit person, who is almost never sick. Two weeks ago he hiked up a mountain, with a climbing a difference of 1000m! This week he is lying in hospital and is confronted with the possibility of removing half of his lung!!

All that I have researched about Mesothelioma has been well, not very encouraging. Right now, we do not know which type of Mesothelioma it is, or if it has attacked any other organ linings.
Six years ago he lost his wife after 10year battle with cancer, and now the thought of the same destiny lies before him. The images of a skeletal woman reduced to nothing still are with all of us.

I, myself have just come to terms with my own mother's death, I have only recently accepted her swift departing, which left many unsaid words of love. And now, another sentence has been passed........
Yet another day dawns, we awake, the clouds pass over us, and the day turns into night, 'life' continues, no matter the pain that engulfs us.

Has Mesothelioma cancer touch your lives as well? I am searching for more than medical facts........
I am so sorry to hear this. You have to try and stay positive. It may not be as bad as you fear. Wait until you have the final results before you start to panic. It will all really depend on what type the disease is and where it is located.
How much exposure to asbestos did he have and what type was it?

I'm afraid my experiences of Mesothelioma are not very encouraging but every case is different. My uncle was a fireman who was exposed to a lot of asbestos through his work as it was at a time when the dangers were not really recognized. It was already fairly advanced when he was diagnosed so he didn't have many options. Your father in law's situation sounds to be much different.

Try to keep strong for your family. I know it's hard as I lost my mother recently too.
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Old 18.08.2011, 10:10
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Hi Pather, sorry to hear about your father in law. Fortunately we have not experienced mesothelioma but my grandad died of metastatic melanoma, it was awful.
Mesothelioma is a bit more common in my country as it is also related to inflammatory conditions such as tuberculosis which is endemic in Peru, it does carry a bad prognosis but if doctors are keen on operating and removing the tumor I would say not all is lost. Bests wishes to you and your family
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Old 18.08.2011, 10:11
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Hi Pather,

I don't know much about the disease, but would like to extend good wishes to you and your family.
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Old 18.08.2011, 10:22
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Thanks for all your kind words.
Yes, we still do have a shimmer of hope, 5-2% chance that it is not malignant. We are also trying not to panic. Its especially difficult on my family as we live in the neighbouring town, and have a very close contact.

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Hi Pather, sorry to hear about your father in law. Fortunately we have not experienced mesothelioma but my grandad died of metastatic melanoma, it was awful.
Mesothelioma is a bit more common in my country as it is also related to inflammatory conditions such as tuberculosis which is endemic in Peru, it does carry a bad prognosis but if doctors are keen on operating and removing the tumor I would say not all is lost. Bests wishes to you and your family
Thanks

The problem is that i dont think that he will opt for the surgery. At the moment he feels that chemo would be an option, and then, he would leave it up to fate, in his words, ich wurde der schlitten fallen lassen!
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Old 18.08.2011, 10:27
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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I am so sorry to hear this. You have to try and stay positive. It may not be as bad as you fear. Wait until you have the final results before you start to panic. It will all really depend on what type the disease is and where it is located.
How much exposure to asbestos did he have and what type was it?

I'm afraid my experiences of Mesothelioma are not very encouraging but every case is different. My uncle was a fireman who was exposed to a lot of asbestos through his work as it was at a time when the dangers were not really recognized. It was already fairly advanced when he was diagnosed so he didn't have many options. Your father in law's situation sounds to be much different.

Try to keep strong for your family. I know it's hard as I lost my mother recently too.

Thankyou. my condolences to you
I guess it not that advanced as only one lung is affected. That is the scary bit, this cancer is relatively untreatable.......or is it?
Such radical surgery then followed by Chemotherapy is quite a bashing to one's body. its horrible to say, but at the moment is feels as though its all doom and gloom.....
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Old 18.08.2011, 10:32
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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Thanks for all your kind words.
Yes, we still do have a shimmer of hope, 5-2% chance that it is not malignant. We are also trying not to panic. Its especially difficult on my family as we live in the neighbouring town, and have a very close contact.


Thanks

The problem is that i dont think that he will opt for the surgery. At the moment he feels that chemo would be an option, and then, he would leave it up to fate, in his words, ich wurde der schlitten fallen lassen!
With my albeit limited knowledge of the disease I would say that if they are offering him the chance of surgery he should go for it. Many people live very happily with half a lung missing and if they can do some follow up chemo as well then his prognosis could be greatly improved.

At least you are near enough to be able to offer your support to the family. It would probably be much worse if you were thusands of miles away.
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Old 18.08.2011, 10:40
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

I am very sorry you all have to come to turn with this sad news.

8 months ago I lost my mom to lung cancer, another kind, not sure what the English term for it is, if I translate directly from Dutch it would be something like Large Cell Lung cancer. Between the diagnoses and her passing were only 10 days....She just turned 65 years old. Because everything went downhill so quickly we never even heard of her treatment options. the doctor later explained that it was so widely spread that they would have only suggested chemo therapy to give her some extra months but never as a possible cure.

I found, in this very short 10 days, that following her lead was the best I could do. If she wanted to talk about it we did and vice versa. I spent a lot of time with her, about 8-10 hours a day. People told me to "take my rest" "Spent time with my family" but I didn't listen and I glad I didn't.

So my advice is, follow his lead, follow your gut feeling. In the end it will be his choice what kind of treatment he will follow and he will need all the support he can get.

I am still trying to coop with this immense loss. The move to Switzerland and everything that comes with it is not helping. But I am glad I have no regrets, there isn't anything I could have or would have done differently.

All the best for you and your family
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Old 18.08.2011, 10:46
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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The problem is that i dont think that he will opt for the surgery. At the moment he feels that chemo would be an option, and then, he would leave it up to fate, in his words, ich wurde der schlitten fallen lassen!
Pather, there is no chemo that works on lung cancer. Let me look into chemo for mesiothelioma if you would like to, but his best chance is surgery.
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Old 18.08.2011, 11:02
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Hi Pather!

I am trully sorry for the loss of your mother and the bad news from your father in law. I never had to deal with Mesothelioma Cancer, but my mother's family has a long history of cancer (pancreas, lungs, ovaries) and I know cancer is not an easy dignose to deal. I wish you the best of luck for the diagnosis of your father in law.

All the best to you and your family!
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Old 18.08.2011, 11:05
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

The tumors are on the lining of the lung sack. Chemotherapy is an option, I am 100% positive, the doctors have said this is part of the therapy.
http://en.wikipedia.org/wiki/Mesothelioma#Chemotherapy
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Old 18.08.2011, 11:08
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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Pather, there is no chemo that works on lung cancer. Let me look into chemo for mesiothelioma if you would like to, but his best chance is surgery.
As far as I know chemotherapy ay slow down the progression of the Mesothelioma thus improving quality of life and increasaing life expectancy but it will not reduce the size of the tumour. His best chance really is surgery and they don't offer it as an option very often so they must think it would be worth it.

However, as Swissastrid said you have to respect his wishes too. It is after all him who is living with the disease and he will want to deal with it in his own way. After his experiences with his wife and her treatment he probably has a good idea of what he is facing.
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Old 18.08.2011, 15:10
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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The tumors are on the lining of the lung sack. Chemotherapy is an option, I am 100% positive, the doctors have said this is part of the therapy.
http://en.wikipedia.org/wiki/Mesothelioma#Chemotherapy
Hmmm you learn somethign everyday...I know Mesothelioma is actually in the pleura which is the membrane around the lungs, hopefully chemo would work...
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Old 18.08.2011, 15:16
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Ok I read the link, chemotherapy will not cure but rather prolong survival, meaning life. So this looks a little better than other lung cancers but it still is not curative, I hope you are able to convience your fatherin law about surgery
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Old 18.08.2011, 15:18
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

I'm so sorry to hear this pather. Unfortunately I can't give a good advice, except for my good wishes in this intense situation for you and your family.
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Old 18.08.2011, 15:24
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

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Ok I read the link, chemotherapy will not cure but rather prolong survival, meaning life. So this looks a little better than other lung cancers but it still is not curative, I hope you are able to convience your fatherin law about surgery
Yes That was my understanding of it too. I believe the average is 3 months though so it's not going to be a miracle cure.

If it really is restricted to half of one lung I think surgery followed by chemo would be the best option for him. (asked hubby as he is working in lung cancer area at the moment although COPD is his real speciality)
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Old 18.08.2011, 15:27
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Yep Belgian MUM, apparently people who get cisplatin chemo get 10 months average vs. 13.3 of those where pemetrexed is added. Depending on the surgeon though, they might choose to give chemo before operating
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Old 19.08.2011, 10:18
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Re: Mesothelioma - Cancer caused by exposure to Asbestos

Thanks, Angela & BelguimMum,

My husband brought him home yesterday, I took lunch up and spent the after noon with him.

I guess he cannot make any decisions right now, he hasn't as yet fully comprehended the impact of the diagnosis. As I said he is at the moment very fit and healthy.
In a few weeks the shock will wear off, and after he does some research of his own, I passed the cancer forum on, thanks Grynch. Then he will be in a better position to make a decision. He will have another consult next week, and asked his 2 kids to be with him for support.
Its very difficult for someone from his generation to disagree with a doctors opinion.

I was mistaken - german translation hiccup, its not half of a lung, but the entire left lung. At the moment he cannot forsee the removal of a healthy organ. And I understand completely, hell i was upset when the dentist had to remove a healthy Molar because of a root infection, which wasnt bothering me. So an entire lung.....
We have decided and explained to him that we support his decision what ever it maybe, and will be here to take care of him, whenever that maybe.

I will keep this thread updated, since this is a rare form of cancer.

Does anyone know of someone who is surviving with one lung? The doctors have said that it will only marginally impact his life, but that is only statical. I guess I'm looking for a shaft of light in this dark tunnel
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