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Old 31.12.2012, 01:02
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New to Basel and just found out that 4 year old son has diabetes!

We were barely in Basel a week when my husband and I noticed that our 4 year old boy was drinking a lot and going to the bathroom a more frequently.

Considering that my husband has lived with type 1 diabetes for the past 30+ years this is something that he picked up on immediately. After a couple of days my husband decided to test our son's blood and his blood sugar was through the roof. In my head I was trying to tell myself that there may be another reason for this but I think deep down I knew what it really meant. I immediately started to google the words Basel, pediatrician and diabetes and found a pediatrician who specialises in diabetes and managed to get an appoinment for the next day. Our fears were of course confirmed, our little boy has diabetes!

I've been on a rollercoaster of emotions since we found out. Devastation, anger and guilt are just a few. It's been 3 weeks now and our son still gets very upset every time we go to test his blood. Fortunately he doesn't seem to mind the insuline injections.

If there are any other forum members who have children with diabetes and have some tips and advice for me, I would really appreciate it. Even though having lived with a diabetic husband for the past 9 years it doesn't compare to now being a parent of a young diabetic child. Especially considering the time of year it is, there's just chocolate everywhere we go and he loves the stuff. Only last week when we were at ZRH airport a lady hands my kids some Lindor chocolates and all I can think is how it's going to send his blood sugar sky high.

I would welcome any advice from anyone who has experience with being a parent of a diabetic child.
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Old 31.12.2012, 04:02
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Re: New to Basel and just found out that 4 year old son has diabetes!

I'm sorry to hear about your son's illness.

I searched the net for some info regarding kids and diabetes in Switzerland and found the following sources:

http://www.d-journal.ch/archiv/kindj...-und-diabetes/ (lots of links regarding kids and diabetes)

http://www.zdg.ch/ueber-uns/beratungsstellen/ (Zurich Diabetes page, you can contact them for info)

http://www.diabetesgesellschaft.ch/d...s-bei-kindern/ (you could try to call the phone # on the bottom left of the page and ask them if they speak English, as they seem to offer camps for kids with diabetes which might be interesting for your son)

Then of course you can call the Children's hospital Basel for info: http://www.ukbb.ch/de/ukbb/das-spita...betologie.html

Or Children's Hospital St. Gallen: http://www.kispisg.ch/?menu=angebot&...abetesberatung

Or Children's Hospital Zürich: http://www.kispi.uzh.ch/Kinderspital...ologie_de.html (click on "Kontakt")


Good luck to you and best of luck to your son!!!!

Last edited by glowjupiter; 31.12.2012 at 04:23. Reason: link added
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Old 31.12.2012, 06:44
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Re: New to Basel and just found out that 4 year old son has diabetes!

Our son has Type 1 diabetes. He was diagnosed at age 6, and is now 11. Have a quick search on the forum here and you might find a few threads where it's discussed.

In our case, my father in law has 5 children and 10 grandchildren, and three of them are type 1, and he feels some 'responsibility' as he's quite likely the carrier of the gene, so I'd imagine your husband probably feels a little like that too.

The other thing I'm aware of is that your husband may have quite a lot of his own 'issues' about his own diagnosis and experience, and your child's experience will be quite different - so let it be that - if your husband's not really coping about it, I'd recommend that he tries to speak to someone privately (diabetes psychologists, online forum, counsellor) because it does bring up lots of unresolved issues - your son's experience will be quite different as insulins are very different these days, as well as strategies and supports for school etc.

There are some awesome online forums, and we joined the zurich diabetes association, and the support here is fabulous, hospital awesome, endocrinologist best in the world, and our son's care is almost completely covered under his basic health insurance, we put aside 50chf a month for the gap between his specialists/doctors/hospital clinics and prescriptions, and it definitely covers those things.

In our case, our son also has Coeliac, which means he has a gluten-free diet, and that is sometimes more hassle than the diabetes... the combo is not so fun. My advice with 'unexpected' treats is to pack a lunchbox and a water bottle when you go out, and if anyone gives you something like chocolate etc, you put it in the lunchbox for the next snack time.

I'm going to assume your son is on injections, not a pump - we are too, but my cousin, aunt, nephew and niece are all pumpers. We haven't made that transition because his current balance of insulin means he doesn't need any injections at school - just morning and evening.

I'll send you a PM with my contact info. There is one other forum member with a similar aged child to you...I'll get her into contact if I can.

YOU ARE NOT ALONE!!

We say 'Welcome to the club that no one wants to belong to'...

We have three children, and we like to say that our son will probably outlive us all because he's so aware of his health, eats healthy almost all the time, doesn't snack between meals, and gets plenty of exercise.

I'd imagine your 4 year old is pretty active, I can only advise in this holiday season to keep active, because our son's insulin/blood sugar balance is waaaay better when he gets enough exercise, running around outdoors etc.

Hugs and kisses.... our son was diagnosed just before christmas, 12 days after our third child was born, and 2 days after we had moved house. 10 days after that we packed the suitcases and went for Christmas with our extended family. It was actually the best thing, because my aunt and cousin who were type 1 helped out with the psychological and practical support, my sister learnt how to do injections, and my other family all rallied around and organised his food etc, and we felt supported...

PM will come to you in a moment...
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Old 31.12.2012, 11:22
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Re: New to Basel and just found out that 4 year old son has diabetes!

Quote:
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Our son has Type 1 diabetes. He was diagnosed at age 6, and is now 11. Have a quick search on the forum here and you might find a few threads where it's discussed.

In our case, my father in law has 5 children and 10 grandchildren, and three of them are type 1, and he feels some 'responsibility' as he's quite likely the carrier of the gene, so I'd imagine your husband probably feels a little like that too.

The other thing I'm aware of is that your husband may have quite a lot of his own 'issues' about his own diagnosis and experience, and your child's experience will be quite different - so let it be that - if your husband's not really coping about it, I'd recommend that he tries to speak to someone privately (diabetes psychologists, online forum, counsellor) because it does bring up lots of unresolved issues - your son's experience will be quite different as insulins are very different these days, as well as strategies and supports for school etc.

There are some awesome online forums, and we joined the zurich diabetes association, and the support here is fabulous, hospital awesome, endocrinologist best in the world, and our son's care is almost completely covered under his basic health insurance, we put aside 50chf a month for the gap between his specialists/doctors/hospital clinics and prescriptions, and it definitely covers those things.

In our case, our son also has Coeliac, which means he has a gluten-free diet, and that is sometimes more hassle than the diabetes... the combo is not so fun. My advice with 'unexpected' treats is to pack a lunchbox and a water bottle when you go out, and if anyone gives you something like chocolate etc, you put it in the lunchbox for the next snack time.

I'm going to assume your son is on injections, not a pump - we are too, but my cousin, aunt, nephew and niece are all pumpers. We haven't made that transition because his current balance of insulin means he doesn't need any injections at school - just morning and evening.

I'll send you a PM with my contact info. There is one other forum member with a similar aged child to you...I'll get her into contact if I can.

YOU ARE NOT ALONE!!

We say 'Welcome to the club that no one wants to belong to'...

We have three children, and we like to say that our son will probably outlive us all because he's so aware of his health, eats healthy almost all the time, doesn't snack between meals, and gets plenty of exercise.

I'd imagine your 4 year old is pretty active, I can only advise in this holiday season to keep active, because our son's insulin/blood sugar balance is waaaay better when he gets enough exercise, running around outdoors etc.

Hugs and kisses.... our son was diagnosed just before christmas, 12 days after our third child was born, and 2 days after we had moved house. 10 days after that we packed the suitcases and went for Christmas with our extended family. It was actually the best thing, because my aunt and cousin who were type 1 helped out with the psychological and practical support, my sister learnt how to do injections, and my other family all rallied around and organised his food etc, and we felt supported...

PM will come to you in a moment...
Hi swisspea, thank you so much for your response and PM, it is very much appreciated.
You're right that my husband's experience was very different. When he tells me about the glass syringes and very long needles he had to use as a child I realise that things have improved immensely. My husband is a very well controlled diabetic. He basically eats normal and has quite a sweet tooth but manages his blood sugar well. I'm almost afraid to say it so as not to tempt fate, but I can't remember the last time he had a bad 'hypo'.

To be honest it's what I now dread the most with regard to my son's recent diagnosis. I've dealt with some scary hypos and hate the thoughts of my little boy to have to go through that. I just hope that like with my husband that I'll be able to read the early signs.

The pediatrician we found is fantastic. She gave us her home and cell phone number and said we can phone or text her night or day if we need help or have questions. During the first week she asked me to text her my son's blood sugar and she would text back with advice e.g. amount of insulin (yes he's on injections for now).

One of the challenges we're dealing with is that we just can't seem to fill him up i.e. he's always asking us for food and saying he's hungry. The doctor says this is normal however I just can't understand where he's putting all the food as he's quite a skinny lad (always was).

Thanks again and it does give me comfort to read that 5 years on your son is coping so well with diabetes.

Last edited by Cailin_74; 31.12.2012 at 11:23. Reason: correct sentence
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Old 31.12.2012, 11:30
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Re: New to Basel and just found out that 4 year old son has diabetes!

Quote:
I'm sorry to hear about your son's illness.

I searched the net for some info regarding kids and diabetes in Switzerland and found the following sources:

http://www.d-journal.ch/archiv/kindj...-und-diabetes/ (lots of links regarding kids and diabetes)

http://www.zdg.ch/ueber-uns/beratungsstellen/ (Zurich Diabetes page, you can contact them for info)

http://www.diabetesgesellschaft.ch/d...s-bei-kindern/ (you could try to call the phone # on the bottom left of the page and ask them if they speak English, as they seem to offer camps for kids with diabetes which might be interesting for your son)

Then of course you can call the Children's hospital Basel for info: http://www.ukbb.ch/de/ukbb/das-spita...betologie.html

Or Children's Hospital St. Gallen: http://www.kispisg.ch/?menu=angebot&...abetesberatung

Or Children's Hospital Zürich: http://www.kispi.uzh.ch/Kinderspital...ologie_de.html (click on "Kontakt")


Good luck to you and best of luck to your son!!!!
Thanks so much glowjupiter! To be honest I haven't had much of a chance to check online resources since my son's diagnosis. I left my Samsung tablet on the plane (Lufthansa tell me that nobody found it!) on our way over to Basel so haven't had much access to the internet... however Santa Claus was good to me by gifting me a new one so i'm back online

I will certainly check out these links you've listed. Thanks again!!
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Old 04.01.2013, 22:06
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Re: New to Basel and just found out that 4 year old son has diabetes!

Hi there

I'm very sorry to hear about your son's diagnosis. Swiss Pea alerted me to your post but I'm logging in under my husband's ID as I use the forum rarely so it would be best to be in contact by phone or email if that's ok with you. (I sent you an email or PM with my contact details earlier today, not sure if you received it yet. If not let me know.) Our daughter was diagnosed last Feb age 4.5 and we have received very good care here. She would be very interested I think, to meet someone else of around her age with type 1 diabetes and I have had a year of living with it too in Switzerland and might be able to help with some practical issues so if you think it might help you and your son then please do just get in touch. Sorry I can't post more here, not really used to forums and prefer to email or speak personally if that's ok. Hope to hear from you soon.
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Old 04.01.2013, 23:11
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Re: New to Basel and just found out that 4 year old son has diabetes!

Hi, Swisspea indeed mentioned you to me. I've checked messages and my email but don't seem to have anything from you. Will PM you myself. We're still in Ireland at the moment as we spent the last 2 weeks here but we fly back to Switzerland tomorrow.
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Old 04.01.2013, 23:25
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Re: New to Basel and just found out that 4 year old son has diabetes!

Hi there

I've just PM'd you as well as I've just realised that any email you send will go to my husbands email a/c and I would have to drag him away from the telly to access it so hopefully you will get my PM and my contact details and we can be in touch once you are back in Switzerland. Good luck with your return trip.
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