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Old 15.08.2017, 18:19
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Bell's Palsey info & support

Hi everyone, I've been meaning to write about something I went through recently. I was very surprised that when I came to the forum to search info about it I found nothing on the subject so I told myself I should write about it as it something so 'common' and yet nobody talks about it until they see you with half face paralyzed.

So about 2 months and a half ago, I woke up one Friday with the left side of my tongue numbed. I immediately made an appointment with the doctor for 15:00hrs. If we rewind a bit, the night before this happened, I had been feeling the top lip shaking and the right eye also and as I have been extremely stresses with the business, family and planning my wedding, I thought it was just my body asking me to calm down and, boy, did it!!
All Friday, at work, my face continued to feel that 'shaky-tickly' feeling in different points of my face as I had the day fully booked, the stress just went up. By 13:00 I had lunch and felt like my mouth went sideways or like it had its own mind. At the doctor he made a test which consisted of basically make me move eyebrows up, move the mouth sideways, smile wide open and then he told me I had something called Bell's Palsey.

I obviously freaked out as I was about to get married and was nervous this was something like a stroke. In the present with the paralysis 90% gone I can tell you what I learned and maybe this will help you a bit if you know someone with the same issue.

I'm no doctor and this is just my personal point of view, if someone has more educated information feel free to correct me as the reason of this thread is precisely to be of help and support for those going though this issue.

Bell's Palsey is a Paralysis that affects mostly one side of the face only, what differentiates it from a brain stroke is that the stroke wont affect the eyebrows, while BP affects from the forehead to the neck.
There is not one specific cause to that (insert name to describe that... blahtopic? ) But basically is the swollen of the facial nerve and thus cannot pass signal to the face.

It has several ways to show up, to me it started with the numbness of the left side of my tongue and a strange flavor in my mouth, as I was lucky to run to the doctor immediately, he was able to prescribe me cortisone (prednisone), please be aware that while taking cortisone, one should be careful with the sugar intake and preferably no alcohol intake. Studies show that patients that take the cortisone within the 3 firsts days, get to a full recovery in mayor numbers as those who doesn't, however I also read that there's people who do nothing and get better as well. As I was about to get married, I wasn't about to get anything to chance so I took the damn prescription. Also if the doctor doesn't tell you, please request something to protect your stomach as the dosis you get is quite high and it may hurt your stomach. be careful with whatever you ingest as your stomach will be upset. In case of pain also take something less aggressive for the stomach, I did feel quite a lot of pain in the neck area so I opted for topic solutions rather than pill intake.

I got everybody moving, I had a head scan, physio for my neck, physio for my face, shock therapy for my facial nerves, chiropractic, you name it!

This is the progression as I remember:

1st symptoms days before was jumping of my eye corner and lips
The day that it presented: numbness of the left side of the tongue
during the next 2 days I started losing control of the left side of my face, first mouth, then eyebrows and eyes and last neck, I could not move them at all, I remember knowing that I wanted to move it but just nothing happened, I could however feel everything.

The recovery:
cortisone:
1st to 5th day dosis of 60. each consequent day 10 less so the 6th day will be 50, the 7th 40, the 8th 30 etc until i get to zero.

I was so careful with my stomach that I didn't have any problems.

on the second week I started having very strong pain in my neck area, making it almost impossible to sleep, I sprayed Sportusal in the area and that helped, however the doctor sent me to physio to massage that area.

After 3 weeks of no sign of recovery the doctor sent me to the neurologist, the pain was still there and the scan came out with the same result. BP

The neurologist sent me to physio for facial massage to relax the muscle to avoid (insert name that I forgot) discinesia? ? basically that the left and right side of my face would not be coordinated and that if i move my eyebrow, my lip responds, at least that's what I understood.

Reading some non medical pages I found out that some people got really great results right after visiting a chiropractor, here I go dialing one.
Whether is a coincidence, magic or it had something to do with it, I can tell that the very next day after that visit I started being able to talk (I was able to talk at all times but people wouldn't understand me and it infuriated me so I spoke monosyllables)

The next big improvement was after shock therapy that the neurologist did to me, first a nerve test which he found out I was at 50% and then he prescribed me a machine that Im still using to stimulate the nerves left to get back to work.

Now I am probably at 90%, people won't realize when they see me but I have a dis-pair while blinking, my smile is well enough but I tend to smile quite big and then is when you can see one side is less open. Other than that, the pain left, and all is pretty much back to normal.

Thanks for reading, I did this post between clients so if you don't get something or Im missing some points, I'll be back to check again.

Here is the list of my doctors in case you want to get in touch with them.

General Doctor:
Dr. Watson
Stadelhoferstrasse 42, 8001 Zürich
044 262 27 13

Neurologist: Dr Albani
Bahnhofpl. 5, 8001 Zürich Phone: 044 224 60 70

Chiropractic:
Dr. Gabriel Gigandet
Chiropraktik Winterthur
Address: Bahnhofpl. 8, 8400 Winterthur
Phone: 052 213 58 41


Physio:
PHYSIOZENTRUM
Zürich Bahnhofplatz 3 8001 Zürich
044 271 33 66
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Last edited by coconut; 16.08.2017 at 14:52.
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Old 15.08.2017, 18:53
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Re: Bell's Palsey info & support

I have nothing sensible to add other than a silly story..

Many years ago (before political correctness) I worked in an office where somebody had some kind of facial deformity.. There was one guy in the office who would occasionally poke fun at this person, making faces, speaking in a silly voice etc.. One day he took it too far and we all told him to shut up..It wasn't funny.

Next day he came to the office with half of his face not responding.. Yes he got BP over night.. Karma .. Oh yes we laughed at him!
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Old 15.08.2017, 19:17
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Re: Bell's Palsey info & support

I think your case must be quite severe for you to have so much therapy. In my experience, that's not the norm.

I had Bells Palsy about 10yrs ago. It came on one Friday night, and like you, I thought I'd had a stroke, but nothing else was affected. I called a friend who's a nurse and she said to just make an appointment with the doctor for Monday morning. Everything was back to normal within a week, but it was very embarrassing/annoying at work. My mates deliberately made me laugh because the difference was more pronounced when I did. Gits!
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Old 16.08.2017, 14:31
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Re: Bell's Palsey info & support

Wow sounds like you had a tough case of BP.

I had BP a few years ago just weeks after giving birth. I had never heard of BP before and like you thought I was having a stroke! In any case, the emergency department (in Australia) knew exactly what I had and prescribed me with a dose of steroids, where the dosage gradually decreased in a series of steps over a few weeks. For me this was sufficient although it did take time for my face to look normal again.

Yes its not fun walking around with a 'floppy face' particularly in the lead up to something like a wedding. OP I hope you're fully recovered now...and yes I've also heard that stress is a big trigger for BP (hence why many women seem to get is after birth...well atleast in Sydney they have observed this!).
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Old 16.08.2017, 14:57
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Re: Bell's Palsey info & support

Quote:
View Post
I think your case must be quite severe for you to have so much therapy. In my experience, that's not the norm.

I had Bells Palsy about 10yrs ago. It came on one Friday night, and like you, I thought I'd had a stroke, but nothing else was affected. I called a friend who's a nurse and she said to just make an appointment with the doctor for Monday morning. Everything was back to normal within a week, but it was very embarrassing/annoying at work. My mates deliberately made me laugh because the difference was more pronounced when I did. Gits!
Quote:
View Post
Wow sounds like you had a tough case of BP.

I had BP a few years ago just weeks after giving birth. I had never heard of BP before and like you thought I was having a stroke! In any case, the emergency department (in Australia) knew exactly what I had and prescribed me with a dose of steroids, where the dosage gradually decreased in a series of steps over a few weeks. For me this was sufficient although it did take time for my face to look normal again.

Yes its not fun walking around with a 'floppy face' particularly in the lead up to something like a wedding. OP I hope you're fully recovered now...and yes I've also heard that stress is a big trigger for BP (hence why many women seem to get is after birth...well atleast in Sydney they have observed this!).

Yes it was a bit worse than normal, its why the neurologist asked for further tests/therapies so that the damage isn't too much because the muscles had been without movement for longer than 2 weeks. The funny thing is that you never know too much about this until it happens to you or a relative, for example my mother had it and I didn't know, my now husband had it too, the husband of a work colleague had it too. It's like it's everywhere but nobody talks about it.

Forgot to add to the first post but I also did this exercises:

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