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  #21  
Old 27.03.2019, 10:22
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Re: Baby development specialist in English?

There has never been a point, ever, when I wanted to hurt the baby, or dump the baby, or hurt myself, or kill myself, during the past 6.5 months. But during these 6.5 months I’ve been worried about her all, the, time. I’ve been trying and trying and I have not yet given up on sorting her issues out. At the same time I am loving her every day, taking her to places and see people every day, giving her love all the time, she’s well loved. I talk to her all the time even though I never get any responses (no baby voice responses, not even much eye contact)

She was orally diagnosed as highly probably intellectually disabled by specialists overseas already. On paper she was diagnosed as developmentally delayed. But the paediatricians here just called it crazy. Her symptoms match everything about autism you can possibly read, except no obvious repetitive behaviour yet. I just want to know how to help her. Not just wait until she is 6 and can’t speak a word and receive some diagnosis then.
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  #22  
Old 27.03.2019, 10:28
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Re: Baby development specialist in English?

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There has never been a point, ever, when I wanted to hurt the baby, or dump the baby, or hurt myself, or kill myself, during the past 6.5 months. But during these 6.5 months I’ve been worried about her all, the, time. I’ve been trying and trying and I have not yet given up on sorting her issues out. At the same time I am loving her every day, taking her to places and see people every day, giving her love all the time, she’s well loved. I talk to her all the time even though I never get any responses (no baby voice responses, not even much eye contact)
Sorry! I feel a bit bad about my post now - didn't mean it to sound so harsh, it was more because it sounded like you needed someone taking care of you because the stress is clearly getting to you.

The fact that you are so worried about her, observing her, going to extra lengths to stimulate and play with her, and taking her out sounds like you are doing the right thing in the meantime until you can find an appropriate diagnosis, if there is one.

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She was orally diagnosed as highly probably intellectually disabled by specialists overseas already. On paper she was diagnosed as developmentally delayed. But the paediatricians here just called it crazy. Her symptoms match everything about autism you can possibly read, except no obvious repetitive behaviour yet. I just want to know how to help her. Not just wait until she is 6 and can’t speak a word and receive some diagnosis then.
Now you've got an appointment with this specialist, take some time out to stop worrying and wait until you've seen them.

There used to be a user on here called "ecb" whom I recall had a lot of experience with autism, having an autistic child herself. You could perhaps try to PM her.
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  #23  
Old 27.03.2019, 12:37
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Re: Baby development specialist in English?

YMMV
My daughter had a lot of issues, delays, doc visits till maybe 4? She is now 10 and a few things are a tad behind (but 2 languages doesn't help) but she's fine.

Kids grow up, catch up.

Both of mine where out of nappies super super early then didn't speak for ages

Worrying does nothing to affect the outcome, love her, take care of her, yourself and relax.... and I know it's hard but so many other mothers I met had "trainwreck" babies and then they grew up and were ok.
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Old 27.03.2019, 19:08
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Re: Baby development specialist in English?

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Thanks. I didn’t see the list of paediatricians?
No, there isn't a list there. That user offered to recommend some good ones
(and not all are useless, after all) .... presumably by PM.

I really hope you can find the strength to persevere. You sound exhausted and perhaps angry or disheartened or both. I hope your upcoming appointment brings some perspective.
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Old 24.04.2019, 11:17
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Re: Baby development specialist in English?

Hi again qomototoro,
I've just seen some recommendations which could perhaps be some help to you as you search for solutions for your daughter. See the end of this post: https://www.englishforum.ch/3023617-post38.html
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  #26  
Old 24.04.2019, 16:53
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Re: Baby development specialist in English?

Hi. I just noticed your thread. If you need more support or want to meet up, I'm happy to meet with you... As I said before, I work with babies... and am a mum of three !



I will send you a PM.
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  #27  
Old 04.08.2019, 23:06
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Re: Baby development specialist in English?

Fast forward to summer 2019, my daughter is nearly 14 months old and is still very much delayed in her emotional / social / cognitive / language development. Her gross motor is her strongest point but she doesn’t walk and can stand without support for maximum 7-10 seconds. She did military crawling for 4 months and started crawling on all fours at 12 months. She sat herself up at 10.5 months.

I have mentioned before that she didn’t seem to know me as a 3 month old. Well as a 14 month old, she still doesn’t care about where I am, whether I’m gone or I’m back, etc etc... no attachment. She doesn’t follow any simple instructions and doesn’t seem to understand any language. She doesn’t like cuddles, doesn’t reach her arms to be picked up, or responds to the request to pick her up. She is extremely hyperactive, cannot sit still for two seconds, constantly moves while being held, refuses to sit on your laps, etc etc.

She has never been afraid of staying alone without the sight of other people. She has never been afraid of strangers or strange environment. She has never displayed any fears, including height, sound, people, water, lake, just anything. At the cliff near the lake she just wanted to get down by turning herself around. She has never made any communicative type of sound. Of course she doesn’t call Mum or Dad yet. She nearly never imitates anything, including gestures or sound.

I’ve seen Dr Gundelfinger twice now. They have called my new paediatrician and asked her to give me a referral to a special needs therapist in my town. Unfortunately it’s been summer holidays and we haven’t started working on my child yet.. She needs a permission from Kinderspital but hasn’t received that permission yet. Dr Gundelfinger said of course it’s impossible to diagnose a child at this age, but he could also not rule out ASD based on her development and behaviours. Only time will tell... but even if it’s not ASD, something has always been very off with her..

I do love her with my full heart though.
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  #28  
Old 04.08.2019, 23:43
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Re: Baby development specialist in English?

how are you doing...
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  #29  
Old 05.08.2019, 14:01
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Re: Baby development specialist in English?

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how are you doing...
Very worried , all the time. Worried about her future, worried she may never speak for her life, worried that I am not doing everything I can to do early intervention for her.. Sometimes sad because my own child doesn’t seem to have a human connection with me.
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Old 05.08.2019, 14:04
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Re: Baby development specialist in English?

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Very worried , all the time. Worried about her future, worried she may never speak for her life, worried that I am not doing everything I can to do early intervention for her.. Sometimes sad because she doesn’t seem to have human connection with me.
I totally get it. Do you have a place or a person you can offload your worries to? Where is your family? Your best friend? X
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  #31  
Old 31.12.2019, 17:27
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Re: Baby development specialist in English?

Happy to report that my 18.5 month old toddler is much more interactive than when she was younger. She still walks a bit funny and she’s not as sociable as others, her language development is not the fastest but I’m much much much more relaxed and less worried now.
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  #32  
Old 31.12.2019, 17:40
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Re: Baby development specialist in English?

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Happy to report that my 18.5 month old toddler is much more interactive than when she was younger. She still walks a bit funny and she’s not as sociable as others, her language development is not the fastest but I’m much much much more relaxed and less worried now.
How are you doing? <3
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Old 31.12.2019, 18:15
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Re: Baby development specialist in English?

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Happy to report that my 18.5 month old toddler is much more interactive than when she was younger. She still walks a bit funny and she’s not as sociable as others, her language development is not the fastest but I’m much much much more relaxed and less worried now.
Very happy to hear. Thank you for the update.

Rufus
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  #34  
Old 31.01.2020, 21:38
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Re: Baby development specialist in English?

I have sometimes heard people saying that they are as adults the opposite of what they were as kids...maybe it is just a question of time.

in any case, it is nice to see the end of this thread is much more reassuring than its beginning.

enjoy your baby, they grow so rapidly
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  #35  
Old 01.06.2020, 18:08
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Re: Baby development specialist in English?

Another quick update about this whole situation

My toddler is 2 years old now and her official ADOS assessment will happen in July. She is very highly likely to get diagnosed with ASD (otherwise KJPP wouldn't have wanted to organise the assessment.)

Her interaction did get better when she was 16-19 months old. But deep down she is still who she is, who she was born as..

So I'm just thinking all these paediatricians and everyone else really shouldn't ignore a mother's instinct. I really wish I were the one who was completely mad but hate to say that my feelings were always right...
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