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Old 21.03.2010, 13:41
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Getting pregnant with PCOS

Hello EFers,

I was loking for some personal advice.

My fiance and i have been trying to concieve for just over a year now with no luck, i have extreemly irregular periods (havent had 1 since May 2009 and that lasted for a whole month) i thought it was because of coming off the pill and hormones having to settle down etc so didnt think much of it, August 2009 still no cycle, so while visiting family in England i popped into te doctors to ask if this was 'normal' the doctor just said oh give it 4more months if nothing has settles come back.... so that was helpfull. November 2009 i got rushed in to hospital (in switzerland) with extreemly bad stomach pains, in the area which i could only explain as the apendix or right ovary, ive never experiance anything like the pain.
My fiances dad works in medicen and was worried it was my apendix or and eptopic pregnancy... so we went straight to see a gyno, who did lots of various test and scans.... it wsnt my apendix and it wasnt an eptopic pregancy..... but when looking at my ovaries... the worse being he right... he could see they were full of 'bubbles'(cysts) and he said this looks like polycystic ovaries...AKA PCOS or Polycystic Ovarian Syndrome. i didnt have a clue what this was so after all the testing and pain killers, i went home and looked it up.
We explained to the gyno we were trying for a baby and i hadnt had a period for X amount of months and he gave me some tablets to try and kick start my ovaries into working again....
the pills worked for 1 month but since November ive had nothing, so ive recently been back for more testing to see 100% what the problem is, the gyno is 99% sure its PCOS but has takes bloods to confirm this, hes also taken various other tests so he can do some horemone testing, to check levles of the different hormones in my system.

Ive looked and looked on the internet about this PCOS and it all says pretty much the same.... its the main cause of infirtility bla bla bla, but when speaking to my gyno, and my sister, who is a midwife, both say its not impossible to have a baby, and my gyno seems hopefull that i will get pregnant, it will just take time and be more difficult.

I have to wait 3 weeks for all my tests to come back, but i was wondering if there was any other women out there who have a simmilar story to me or have pcos and have concieved. not having any friends who have or might have pcos i feel a bit lonely in the situation. so any info or advice would be welcomed with open arms!

Sorry for such a long post.... Erin
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Old 21.03.2010, 13:48
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Re: Getting pregnant with PCOS

I really think you are better posting on a fertility forum than here

FWIW I know people who have got pregnant with PCOS but I doubt English forum is your best place to discuss it. Do a search for fertility forums on google
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Old 21.03.2010, 13:49
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Re: Getting pregnant with PCOS

I don't have any experience with having kids but I do with (thankfully only slight) PCOS and just putting up with that is a pain (no pun intended), so I felt I'd just reply to give you a bit of "virtual support". And I also know a lady who was told she couldn't have kids because of her PCOS and she now has two, so I guess, nothing is impossible. With some people, changing their diet can help, my auntie has decided to ditch the gluten and is finding a lot of hormonally related stuff less of a hassle. But then she isn't trying to get pregnant, so I don't know if it could help with that.

Totally unqualified response but I guess that looking for solutions beyond standard medicine could help, as it often does with stuff that can't be cured, only alleviated. From a psychologist's point of view, I think it's important that you focus on staying "Erin", rather than "the woman who is trying to have kids despite PCOS", as the latter will reduce you to something that doesn't do you justice. If "Erin" ends up having kids, then that's great, if it doesn't work (although I really hope that won't be the case), then you are still you, not the woman who didn't have kids.
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Old 21.03.2010, 13:57
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Re: Getting pregnant with PCOS

Sorry to hear about your problems. I think the best thing to do when you see your gyno again is to ask also about changes you can make in your life that will maximise the chance of conceiving with PCOS.

I can tell you a story though. In Australia, a hospital was asking for women to be involved in a research trial about Polycystic Ovary Syndrome. I decided to sign up, as they needed women without PCOS to be a control group for the women who did have it. They took lots of blood tests, not just to look at my female hormones, but also at cholesterol, blood sugar etc. They also took my weight and calculated my BMI.

The wakeup call for me came when the nurse who was performing tests on me thought I was in the PCOS group. Basically, the results of the tests indicated I was not as healthy as I should have been. My cholesterol values were way too high, I was quite overweight, and my hormone panels were at the limit.

Since this shock, I had decided I needed to change my lifestyle. Over the course of a year, I changed my diet quite drastically and started to go swimming. It is now four years later and I have permanently lost about 15 kilos, and am now fit. My cholesterol has come right down, and I just generally feel so much better.

Not just with (generally) healthy people, but especially with PCOS, it is possible that lifestyle changes could definitely help improve the condition. I hope this helps feeling more empowered. (In other words, there are things you can do yourself, and any small step will take you in the right direction, whether it is on the nutrition front, or exercise front, or (hopefully) both.

PS. Swimming is a great way to start, as you can start at your own pace, but you will feel better before long.

Last edited by muze7; 21.03.2010 at 14:34.
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Old 21.03.2010, 13:59
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Re: Getting pregnant with PCOS

I just can agree with Nicky. I had a look on google to know what it was and read only a bit of a french female forum talking about that.

One thing I've read : Lot of them got pregnant.

Good luck.
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Old 21.03.2010, 14:10
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Re: Getting pregnant with PCOS

A friend of mine with PCOS conceived successfully using Clomid. Here in Switzerland, the doctors will do an ultrasound just after ovulation to check for the number of eggs released and then can advise you to try to conceive only when the number of eggs is < 3.

I would recommend seeing Dr Singer in Zurich/Thalwil. He seems to be the expert in this area. Friends who were 40+ when they began thinking about kids got their little boy thanks to him.
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Old 21.03.2010, 14:15
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Re: Getting pregnant with PCOS

hi

i too conceived many years agowith PCOS using clomid. took about 6 months of treatment
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Old 21.03.2010, 14:40
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Re: Getting pregnant with PCOS

Hi Erin.

I too have PCOS and have some experience with fertility issues and other similar things, if you have some questions, please feel free to give me a PM BUT as for a long time, I wasn't trying to get pregnant, what I know is more related to other areas of PCOS related complications.

Meanwhile, the Soul Cysters message board for women with PCOS (and their loved ones) has some very useful information and it seems they have a pretty good and supportive community.

PCOS is something that you will probably be best off finding a gynecologist who is very familiar or specializes in to have as your care giver - there are a lot more things related to PCOS than "simple" (if heartbreaking) issues related to fertility, pregnancy and the ability to carry a baby to term.
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Old 21.03.2010, 15:08
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Re: Getting pregnant with PCOS

Thank you to everyone for there replies,

Its really nice to know there are 'real people' out there with sucess stories and who are willing to share there experiances with me.

Kittster - you are very right when you say

'I think it's important that you focus on staying "Erin", rather than "the woman who is trying to have kids despite PCOS'

My fiance says this to me all the time, he says i need to 'stop stressing' about things and everything will work out, but i dont think he really understand how i feel inside when i'm a woman who doesnt work properly. Even tho i know what he is saying is true i find it difficult to think about other things than the possibility of not being able to give the man i love a family...

muze7 - ive read lots about pcos and weight loss and a typical person with pcos is normally classed as overweight... as for me apparently i have a completly normal BMI i am 164cm tall and weight 52kg. but i dont actually do any exercise so maybe going simming a few times a wek will help me feel better as a whole?


I have a very good gyno who i am very happy with at the moment (he is a friend of my fiances family) his name is doctor fernando blanco and he is a specialist in gynecology and obstetrics, he is very friendly and his English is good.
2 more weeks of waiting untill i know for defo what hormonal inbalences i have and then i suppose we can start with treatment.
Thank you all again for your replies.
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Old 21.03.2010, 15:24
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Re: Getting pregnant with PCOS

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I really think you are better posting on a fertility forum than here
Your comments surprise me. Should I take it that we should start posting football comments on a football forum, housing comments on a housing forum etc etc.

The OP asked for advice like so many people do on this forum for non-Swiss related issues, but it never stops replies whether we are experts or not. However what can happen is that Efers could give the OP some hope through their experience and because we seem like 'normal people' and even offer a name of an expert in Switzerland that they may have come across, which happened in this case.

One of the great benefit of EF IMO is its wealth of knowledge in most subjects.
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Old 21.03.2010, 15:28
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Re: Getting pregnant with PCOS

I have PCOS too and I am receiving treatment...it is long and I have heard painful (not physically) but if you really know you want to have children its a personal choice.
You can be sure that there are great doctors here in CH that can help you. I go to frauenspital in Basel and there is the association kinderwunsch which I do not know if it is everywhere in CH but they are super helpful.

Good luck!
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Old 21.03.2010, 16:00
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Re: Getting pregnant with PCOS

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Your comments surprise me. Should I take it that we should start posting football comments on a football forum, housing comments on a housing forum etc etc.

The OP asked for advice like so many people do on this forum for non-Swiss related issues, but it never stops replies whether we are experts or not. However what can happen is that Efers could give the OP some hope through their experience and because we seem like 'normal people' and even offer a name of an expert in Switzerland that they may have come across, which happened in this case.

One of the great benefit of EF IMO is its wealth of knowledge in most subjects.

My comments are more based on experience of such nature and gaining more helpful advice from dedicated forums. It was actuallymeant to be a helpful reply and I have PMd the OP with suggestions of some more helpful and useful forums

If i came across as saying DO NOT post here then apologies - it was advice to seek help from a group of others who may have more experience
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Old 21.03.2010, 16:20
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Re: Getting pregnant with PCOS

My thoughts will be similar to Nicky.

PCOS is an extremely common syndrome...

And you will definitely get more useful information and support from an appropriate infertility forum...

I guess some people also consider infertility a 'private business' and not something to be aired on a general public forum where we have a mixture of genuinely helpful people, and some who just like to poke fun...and here on this forum, both are welcomed, but if you are seriously struggling with infertility then you might not want anyone to poke fun at you about it...

That said, I recommend several things in my other life on another parenting forum - for PCOS/Infertility:
1. Both partners go on a 'health kick' - no smoking, minimal drinking, improve diet.
2. General checkup for both partners (pre-conception) - HIV, Hep C and all the usual blood stuff. Because you have time to do this while you are trying to get pregnant. Things like Rubella (German Measles) immunisation can be checked, and you might need a few vaccinations which you can't get done when pregnant, and will potentially protect your unborn baby from nasty complications (Rubella in pregnancy causes deafness & blindness).
3. Get his sperm checked before you do all the invasive stuff (it really *annoys* me how all the problems instantly are 'woman's' problems - sure, you might have PCOS but if his sperm are not swimming it's not going to make much difference).
4. Do some relationship counselling, because it's really stressful going through any sort of infertility/pregnancy complications.
5. See a billings counsellor -they will help you with knowing your 'fertile' signs and the best strategies for increasing your chance for conception naturally.
6. A book - called 'the natural way for better babies' - it's Australian - the author is Francesca Naish - if you aren't into naturopathy, skip that bit (I'm a skeptic) but her general information about cycles, fertility, conception, health, improving your chances, is helpful and it's good to keep it all in perspective too..

My cousin had PCOS. She conceived twins at 34 with fertility treatment. They are her only children. Born healthy, no complications...

There is a theory that most women who have PCOS don't know about it, and they don't find out about it unless they have trouble conceiving...

If you're over 40, start with the relationship counselling...because fertility treatment is a rollercoaster ride...
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Old 21.03.2010, 16:39
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Re: Getting pregnant with PCOS

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If you're over 40, start with the relationship counselling...because fertility treatment is a rollercoaster ride...
I don't think "relationship counseling" is really necessary but some kind of mental accompaniment should be part treatments at all ages.
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Old 21.03.2010, 17:09
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Re: Getting pregnant with PCOS

As a new mum, I feel so much for those who have difficulty with becoming one. I know so many people (for various reasons, not just PCOS) who are wonderful deserving people and would make fab parents, but face challenges.

So while I can't help with specific stories, maybe I can help with some links which they use too...

PCOS Preconception and Pregnancy support forum at Gurgle

PCOS - Polycystic Ovary Syndrome at babycenter
Help with PCOS while TTC at babycenter

There are lots of posts with a lot of success stories. I hope they give you reassurance and hope that it is very possible!

All the best of luck.


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Old 21.03.2010, 17:20
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Re: Getting pregnant with PCOS

You might try or contact

www.gyne.ch, Dr. Michael Singer.

He is a real expert. He also might know someone in your area, if travelling to Zurich is rather a long trip.
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Old 21.03.2010, 22:47
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Re: Getting pregnant with PCOS

Thank you all again for your messages, public and private, i understand that for some people this can be a extreemly private matter and i am sorry if i have upset anyone who had read my post.

having ready everyones replys and also all of the private messages ive recieved i feel that little bit happier inside and that little bit more hopeful for the future, knowing there are people out there the same as me who are parents!

i am so confused with reading so many different things on the internet about PCOS i don't know what to believe, but with all your messages i am beginning to understand that little bit more!

Thank you for all the links to forums and websites. i want these next 2 weeks to pass so i can have my test results back so my gyno and i can work out the next stage and hopefully move on in a positive way!

Erin
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Old 21.03.2010, 23:08
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Re: Getting pregnant with PCOS

I can really recommend the forum www.babyandbump.com if you want to talk to other ladies with PCOS.
Good luck x
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Old 21.03.2010, 23:52
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Re: Getting pregnant with PCOS

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i am so confused with reading so many different things on the internet about PCOS i don't know what to believe, but with all your messages i am beginning to understand that little bit more!
Erin,

It is not surprising that things are a bit confusing for you after reading what some other women have said about their experiences with PCOS.

The reason I say this isn't surprising is that if there is any one thing that is common to us all it is that there is such a wide variety of symptoms, issues and complications that we are prone to have different experiences from each other.

So... take something from everything that you are reading and hold onto the parts that seem familiar to you. Make a list of things you have concerns about or are maybe simply curious about ("could this happen to me" sort of thing if you're not experiencing it) to discuss with your doctor.

Some women have a lot of problems with hair falling out and going bald, others have problems with too much hair in the wrong places - and still others have problems with both or neither.

Some women have problems with irregular periods (probably most) but not all... some women don't have much difficulty conceiving but have problems carrying to term because of hormonal imbalances. Some don't even necessarily have actual cysts but have so many other things that are attributable to PCOS that it isn't until reading about what other women are going through that THEY bring the possibility to the attention of their doctor.


Keep your chin up though.
Women with PCOS DO get pregnant and have healthy babies... getting to know your body and what works specifically for you AND A good relationship with a good doctor helps a lot.
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Old 29.04.2010, 09:29
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Re: Getting pregnant with PCOS

Hey guys

just a little update, had all my test results back and yes i defo have PCOS. i have a final check up today and i will be having an operation known as 'Ovarian Drilling' on tuesday 4th May. Fingers crossed it works! - feeling much more confident now, thanks to every1 for all there advice! i hope everyone has a lovley day! x
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