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Old 11.11.2010, 13:37
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hearing loss. Looking for help!

My 4 year old girl was diagnosed recently with profound (>90db) hearing loss in one ear. The second ear works just fine (or better than average) and the kid is well developed emotionally, socially and linguistically (she speaks fluently 3 languages). As parents, we are still in early phases of understanding the implications.
I would like to know which treatments you tried or heard of even if they are experimental or old fashioned approaches. What kind of tests, beside audiologic ones, could help in understanding the causes. We were told she may have less than 1% chance of recovery and the best would be to learn to live with it.

What is your general experience with this or similar problem(s)?
my best,
Mihai
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Old 11.11.2010, 13:55
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Re: hearing loss. Looking for help!

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Old 11.11.2010, 16:05
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Re: hearing loss. Looking for help!

Thanks Tom,
A word of encouragement is always a good thing
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Old 11.11.2010, 16:52
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Re: hearing loss. Looking for help!

Hi, I'm 75% deaf in the left ear . The drum got totally damage after too many ear infections. So I learnt to deal with it, I had an operation when i was young they put a prothesis behind the drum to try to hold it up. I also spent lots of sessions at a Ear and throat doctor who often had to check.


Now after all these years I have learnt to live with it. I can't put the phone on this ear, i will not hear anything otherwise so putting the phone to my right ear has just become automatic. When I go out, I have to make sure I sit on the left of the person because if someone is talking to my left ear I can't hear anything either. So the people hacve to talk to my right ear. I used to be quite annoying in pubs where it's noisy!

Will she have to wear something a device behind her hear to increase her hearing ?

I d say the main thing is to explain to her what is the problem and to explain to her that there is no need to be embarassed and that she should say if she can't hear when somebody is talking to her. The rest is just obvious things like sitting in front in the class etc..

Anyways , my hearing loss was diagnosed 30 years ago so maybe other helps and treatment are in place but i don't know ,I'm afraid. All I can say is that your child will get used to have to live with it with no big difficulties I'm sure.
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Old 11.11.2010, 16:59
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Re: hearing loss. Looking for help!

Be aware too that she is at a disadvantage working out what direction a sound is coming from. This is particularly important for safety when crossing roads - set a firm example about only crossing with the lights, at marked crossings, and being patient, checking both ways...

My other advice would be to teach her to take care of her hearing/ears - avoid large sounds, place her hands over her ears if there is a big noise..because in the long-term she is going to really need that one ear to stay very healthy....avoid things like earphones, too loud music, industrial noise etc...
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Old 11.11.2010, 17:00
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Re: hearing loss. Looking for help!

I too am profoundly deaf in the right ear. This was a result of a brain tumour.

I have to sit on the corner of the table with my good ear pointing in to the table to catch all the sound.
At work I need to position myself the same way, good ear pointing to my colleagues. Phones on left. I hate mobile phones and speaking on the phone in general as I keep any devices that radiate away from me.
I have to walk on your right, so as to hear what you are saying.
I can't frequent clubs/bars/loud places because there's is only so much 'pardon me?' people can stand. Besides, I'm grumpy.
I can't hear a bloody thing on planes. A lady once hit me with the in-flight magazine because she had been asking to be let out and I never heard her.

Be careful when crossing roads. Sound direction is now impossible. If a bicycle passes me on the right, I hear it on the left. When I lost my hearing I would do things like move into the bicycle as opposed to away from it. I have learned not to panic. This is something that just can't be fixed. If you call me, be sure to put up your hand as I have no idea where sound comes from.

Otherwise there is nothing to treat it. You learn to lip read along with listening (if I am not looking at you while you speak, I can miss a lot) - it all becomes second nature.

The one advantage is selective hearing. I also sleep well because good ear goes down on the pillow.
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Old 11.11.2010, 17:16
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Re: hearing loss. Looking for help!

I have a 60%-70% hearing loss in my left ear and as others have said you learn to cope. Localizing sound is a problem as are situations with a lot of background noise, but again you learn to cope.

.
perhaps all of us with partial hearing loss should organize a get'together?.. seating arrangements might take awhile tho..
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Old 11.11.2010, 17:17
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Re: hearing loss. Looking for help!

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The one advantage is selective hearing. I also sleep well because good ear goes down on the pillow.

I was going to say that too ! it's great.. i only need to put one ear plug
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Old 11.11.2010, 20:08
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Re: hearing loss. Looking for help!

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Hi, I'm 75% deaf in the left ear . The drum got totally damage after too many ear infections. So I learnt to deal with it, I had an operation when i was young they put a prothesis behind the drum to try to hold it up. I also spent lots of sessions at a Ear and throat doctor who often had to check.


Now after all these years I have learnt to live with it. I can't put the phone on this ear, i will not hear anything otherwise so putting the phone to my right ear has just become automatic. When I go out, I have to make sure I sit on the left of the person because if someone is talking to my left ear I can't hear anything either. So the people hacve to talk to my right ear. I used to be quite annoying in pubs where it's noisy!

Will she have to wear something a device behind her hear to increase her hearing ?

I d say the main thing is to explain to her what is the problem and to explain to her that there is no need to be embarassed and that she should say if she can't hear when somebody is talking to her. The rest is just obvious things like sitting in front in the class etc..

Anyways , my hearing loss was diagnosed 30 years ago so maybe other helps and treatment are in place but i don't know ,I'm afraid. All I can say is that your child will get used to have to live with it with no big difficulties I'm sure.
Thanks for sharing your experiences! We do not know if our daughter has to wear anything. We found out yesterday. My wife and I try to 'digest' the news

Best, Mihai
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Old 11.11.2010, 20:13
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Re: hearing loss. Looking for help!

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I was going to say that too ! it's great.. i only need to put one ear plug
Do you remember that lovely chapter in Captain Corelli's mandolin?
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Old 11.11.2010, 20:32
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Re: hearing loss. Looking for help!

Yes, even though the film got ripped to shreds by critics I loved Captain Corelli's mandolin.
To the OP, hearing loss is not uncommon in children, they grow but they do not grow in a linear fashion, means that some bits of the little buggers grow faster than others, for instance the ear-canal can grow a bit faster than the anvil and hammer (the mechanism that lets humans hear) children then go deaf until the other bits catch up, Slammer has three kids so Slammer now knows why they never listen.
This will pass and I hope that this is your problem. Good luck
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Old 11.11.2010, 20:33
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Re: hearing loss. Looking for help!

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I too am profoundly deaf in the right ear. This was a result of a brain tumour.

I have to sit on the corner of the table with my good ear pointing in to the table to catch all the sound.
At work I need to position myself the same way, good ear pointing to my colleagues. Phones on left. I hate mobile phones and speaking on the phone in general as I keep any devices that radiate away from me.
I have to walk on your right, so as to hear what you are saying.
I can't frequent clubs/bars/loud places because there's is only so much 'pardon me?' people can stand. Besides, I'm grumpy.
I can't hear a bloody thing on planes. A lady once hit me with the in-flight magazine because she had been asking to be let out and I never heard her.

Be careful when crossing roads. Sound direction is now impossible. If a bicycle passes me on the right, I hear it on the left. When I lost my hearing I would do things like move into the bicycle as opposed to away from it. I have learned not to panic. This is something that just can't be fixed. If you call me, be sure to put up your hand as I have no idea where sound comes from.

Otherwise there is nothing to treat it. You learn to lip read along with listening (if I am not looking at you while you speak, I can miss a lot) - it all becomes second nature.

The one advantage is selective hearing. I also sleep well because good ear goes down on the pillow.
Thanks a lot.
We refine our understanding of the problem by the hour. I sensed someone could not localize a sound but, now I get that the source of the sound could be just opposite of what is perceived.
thanks
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Old 11.11.2010, 20:37
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Re: hearing loss. Looking for help!

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Be aware too that she is at a disadvantage working out what direction a sound is coming from. This is particularly important for safety when crossing roads - set a firm example about only crossing with the lights, at marked crossings, and being patient, checking both ways...

My other advice would be to teach her to take care of her hearing/ears - avoid large sounds, place her hands over her ears if there is a big noise..because in the long-term she is going to really need that one ear to stay very healthy....avoid things like earphones, too loud music, industrial noise etc...
Thanks a lot

Fill my notebook...street crossing, ear cleaning and 'maintenance', no diving etc

thank you
mihai
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Old 11.11.2010, 21:15
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Re: hearing loss. Looking for help!

A unilateral profound hearing loss does present some problems but there are also a number of options. A hearing aid, for one, can help and today's technology means that it can significantly help with speech understanding in noise, rather than just sound awareness and localization.
Even if one side is unaidable, and a hearing aid for that ear does not help, a CROS fitting can also be useful for sound awareness and understanding.

Listening cues and tactics are also very useful although if your daughter's hearing loss is congenital she probably already uses a lot of these.

And lastly build a good relationship with your audiologist rather than listening to well-intentioned but, at times, incorrect information.....



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I too am profoundly deaf in the right ear. This was a result of a brain tumour.

Otherwise there is nothing to treat it.
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for instance the ear-canal can grow a bit faster than the anvil and hammer (the mechanism that lets humans hear) children then go deaf until the other bits catch up, Slammer has three kids so Slammer now knows why they never listen.
This will pass and I hope that this is your problem. Good luck
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Old 11.11.2010, 21:23
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Re: hearing loss. Looking for help!

Incorrect? Could be, I am no expert and can only speak from experience, a hearing loss on two of mine was diagnosed as such and a few months later both children had full hearing again.
As I said I wish this is the problem and you are correct, a good relationship to the audiologist is much better than my observations.
What ever the outcome all the best.
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Old 11.11.2010, 21:37
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Re: hearing loss. Looking for help!

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I have a 60%-70% hearing loss in my left ear and as others have said you learn to cope. Localizing sound is a problem as are situations with a lot of background noise, but again you learn to cope.

.
perhaps all of us with partial hearing loss should organize a get'together?.. seating arrangements might take awhile tho..
Thank you,
Seating should be no problem for a group of smart guys

Best, Mihai
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Old 11.11.2010, 21:48
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Re: hearing loss. Looking for help!

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Yes, even though the film got ripped to shreds by critics I loved Captain Corelli's mandolin.
To the OP, hearing loss is not uncommon in children, they grow but they do not grow in a linear fashion, means that some bits of the little buggers grow faster than others, for instance the ear-canal can grow a bit faster than the anvil and hammer (the mechanism that lets humans hear) children then go deaf until the other bits catch up, Slammer has three kids so Slammer now knows why they never listen.
This will pass and I hope that this is your problem. Good luck
Thanks Slammer,
I hope you are right. There is a big difference between a doctor's statistics on recovery and a father's wish on recovery. We want to see what the coming months will bring and we'll decide afterwards. A full or partial natural recovery will bring you a bottle of champagne from me because you are the first person who tells me there is a chance.
Thanks, Mihai
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Old 11.11.2010, 22:03
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Re: hearing loss. Looking for help!

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A unilateral profound hearing loss does present some problems but there are also a number of options. A hearing aid, for one, can help and today's technology means that it can significantly help with speech understanding in noise, rather than just sound awareness and localization.
Even if one side is unaidable, and a hearing aid for that ear does not help, a CROS fitting can also be useful for sound awareness and understanding.

Listening cues and tactics are also very useful although if your daughter's hearing loss is congenital she probably already uses a lot of these.

And lastly build a good relationship with your audiologist rather than listening to well-intentioned but, at times, incorrect information.....
Thanks BHBT,

I am sucking info on hearing aids like a vacuum machine.
Right now I am very frustrated because we got no clear answers why this happened, when or what can we do to reverse it. I am a scientist and I know some events are connected by causality: the cause of deafening is ... and we can do... It looks to me that the ORL doctors have a philosophical acceptance of the fact and advise to live with it. I am convinced they are very good and their conclusions are based on experience, however I know even the fight against cancer has a lot of winners. This is not the case against hearing loss. Hearing aid systems are not ways to win but ways to compensate for a loss.

Best, Mihai
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Old 11.11.2010, 22:07
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Re: hearing loss. Looking for help!

Never forget that the glass is always half full and I will now boost the gain on the fridge to champagne cooling temperatures, keep us informed.
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Old 11.11.2010, 22:32
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Re: hearing loss. Looking for help!

Hi all

I am also a member of the club! I was diagnosed as being completely deaf in one ear when I was about 6 years old and this has probably been the case since birth. No known cause in my case.

It never really caused me any problems when I was younger as my good ear was "normal" (perhaps only just normal but "normal" nevertheless). My listening skills in foreign languages were on the poor side but I made up for that in other areas and I wasn't really aware of it at the time. I never had to sit on the right side of someone to hear what they were saying. The only issue was knowing the direction of sounds which never really caused a problem.

However, I started to get tinnitus when I was 21 and from about the age of 26 I was convinced that my good ear was deteriorating slowly. Nothing showed up in the hearing tests though until I was 33 when my good ear was showing high frequency loss equivalent to a 60 year old. Again, no known cause and I had always been told that this would not happen. Apparently my hearing was still not bad enough to warrant using a hearing aid.

I am now 37 and it is a slight nuisance. I tend to notice it when I am talking to someone behind a glass shield, such as when buying a ticket at the train station or similar. Sometimes I hear well and I am surprised and other times I can't seem to hear a thing. I am sure I have annoyed plenty of people. Like Traubert says, you can only say "pardon me" so many times. Acting grumpy is a lot less soul destroying than trying to explain it to someone who is never going to understand anyway.

I did go through a phase a few years ago when even restaurants were unbearable due to the noise of chattering (which is known to be over 90dB). This seems to have subsided somewhat now, unless restaurants over here are quieter than in the UK. At least over here if I don't hear someone they think my French is crap instead of just thinking I am stupid. I more or less gave up trying to learn German because it's so hard to catch what people are saying.

Coming back to the OP, I would suggest getting a copy of your daughter's audiogram so that you have a baseline to compare with in years to come. I agree that avoiding loud noise would be a good idea. Stick to the obvious like swisspea says: avoid loud music , guns and industrial noise. Instruments like violins and brass and drums are known to cause hearing loss to the player and to the poor sods sat right in front of them in the orchestra. My ENT consultants always said that the only thing to worry about is bombs going off. I would disagree with that to be honest but it puts things in perspective. Nightclubs are ridiculously loud (at least in the UK) so I would avoid those. Another thing is that smoking accelerates noise induced hearing loss.

As for treatments, unfortunately I don't know of any which would be suitable. Since she has some hearing to amplify, she may be offered a hearing aid but she will have to decide if it's worth the hassle. Your daughter will probably be fine without one (even more so as she already speaks 3 languages) and you won't want to make this a bigger part of her life than it needs to be while she is growing up. Social skills are the main thing.

One more point is that I have found several doctors in the UK advising ear syringing even though this is not advised in people having only one working ear. There is a small risk of causing irreversible damage so syringing is best avoided. The safest method of ear wax removal is by suction which is done by the ENT.

I agree with the others and grynch's joke about seating arrangements made me laugh!
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