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Old 13.12.2010, 16:38
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Re: Heart murmur in children

Hello,

We went to the appointment for my daughter's heart tests but it didn't go well at all.

The time they gave us was during her nap time, so she was very tired and sensitive. When we arrived, a lady came to bring us to the room where they perform the ultrasounds and cardiography.

The doctor has is back to us doing some shopping on internet. He didn't say hi, didn't look at us. We took our jackets off and the lady asked me to take off the clothes of the upper body of my daughter. The doctor turn finally to us, said his name shake our hands and began to check my daughter. I think that upset her because she didn't want him to touch her at all. She did a huge scene and the three of us tried to calm her down without success while the doctor was puffing and repeating I can't work like this, I can't work like this...

I told them that maybe to give a bit of time for her to feel safe and secure will help, but apparently it wasn't on his mind. So the tests weren't successful at all.

She was very upset, like I rarely saw her like this before.

The fact that the doctor didn't talk to her first and make her feel safe (he never spoke a word to her) the fact that she was tired and to have a bunch of wired scotch on her was enough to make her lose her temper. Her normal doctor is so nice, he always takes time to talk to her and she reallly likes him. As opposite to that doctor who do works for the children hospital...

Anyway, now apparently we will have to get a new appointment and it will be just in February!

That story is still not done.

Thanks guys for your supports!
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  #42  
Old 13.12.2010, 16:51
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Re: Heart murmur in children

My bro was diagnosed with a heart murmur as a baby. Never had any issues/complications/situations since, seems to be a no biggie. Personally I was also checked, but didn't show signs of a heart murmur, however a couple weeks ago there appears to be a hole in my heart. Not sure how that will progress, but so far it's been fine. Overall little heart defects don't seem to cause many problems, perhaps a slightly shortened life span, but overall a pretty impressive pump from an engineering point of view.
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Old 13.12.2010, 17:06
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Re: Heart murmur in children

Wow, sorry for this weird experience...Could you call up the hospital and explain the situation? Can you talk to your regular ped and explain to him that the doctor scared your child who then wouldn't cooperate and you are not willing to wait up another 2mo for a check? Are you going somewhere for xmas where you could have the test done there? I'd fight my cause here, really. Just because a doc is disinterested does not mean you have to wait, if there are risks involved linked to your child's condition, I would need to know asap. Don't give up, call his supervisor, or try to get your ped on your side and discuss what to do next. You are a client, if you do not like their service, contact another hospital. Maybe you can take a train to a dif city. I wouldn't have my child's health rely on some doc in a bad mood. Good luck!
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  #44  
Old 13.12.2010, 17:26
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Re: Heart murmur in children

Nil,

I agree with MusicChick. Kick the doctor's butt, call the hospital and your insurance company and raise hell. Why the heck should a patient wait for a Doctor to get over his mood swing. I am getting tired of this BS in this country where the end Customer (patient, customer, tenant etc...) is not heard. Most of the time it is alright because this is the way stuff works here but to behave like this with a concerned mother and little child is unacceptable!!!!!

Don't take this lying down.
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Old 13.12.2010, 17:27
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Re: Heart murmur in children

We will call her ped tomorrow since he wasn't in the office today. We want a new appointment but with indeed a different doctor. It is already an enough stressful experience without having to deal with cold doctors.

My daughter loves to talk to strangers and she had no problem what so ever with the lady, but the doctor? He didn't passed. I am quite sure his attitude put her off.

We are going to the US so we might be able to check there if it is possible.

It is already frustrating to have to wait, again! But much more frustrating to have been treat like this by a doctor who works with children as his daily job!
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Old 13.12.2010, 17:32
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Re: Heart murmur in children

Nil, oh goodness, how sad! I`m so sorry to hear this!! My son is very sensitive as well and does not warm up to anyone unless they have a few moments of one-one time with him. It was really not to much to ask of you for the Dr. to say "hello" and to have him introduce himself to you and especially to your daughter.
I would seriously not undress her until the Dr. has introduced himself, I would even go as far as asking the Dr. if he could calmy explain to your daughter what he is about to do, so she will feel more comfortable.
Your daughter can feel that you may have been a bit tense and nervous and so therefore she was mirroring these feelings.
I pray that you will have a better experience next time
Does the Dr. speak english??

Good luck and best wishes
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Old 13.12.2010, 17:34
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Re: Heart murmur in children

Shocking behavior and I've experienced something similar with a dentist and my son. My son needed several fillings (he's 9) the dentist promised that they were really really shallow holes and he wouldn't need a local. The dentist was wrong, one was deep and the dentist drilled into my sons nerve.

My son was in hysterics on the chair, tears pouring down his cheeks. The dentist starts getting stroppy "I can't work like this" also came from his mouth.

I was furious. The dentist is our family dentist and has always been very good with us. My husband is friends of a friend of his and so didn't want to change. I said, I refuse to take our son to him again, so my husband now takes him.....

A a childrens hospital it's just unacceptable, it really is. Make a complaint about the doctor. I'm sure your little girl is going to be fine - but it is so distressing to have a child suffer because someone is unable to know how to handle children.
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Old 13.12.2010, 17:44
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Re: Heart murmur in children

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Nil, oh goodness, how sad! I`m so sorry to hear this!! My son is very sensitive as well and does not warm up to anyone unless they have a few moments of one-one time with him. It was really not to much to ask of you for the Dr. to say "hello" and to have him introduce himself to you and especially to your daughter.
I would seriously not undress her until the Dr. has introduced himself, I would even go as far as asking the Dr. if he could calmy explain to your daughter what he is about to do, so she will feel more comfortable.
Your daughter can feel that you may have been a bit tense and nervous and so therefore she was mirroring these feelings.
I play that you will have a better experience next time
Does the Dr. speak english??

Good luck and best wishes
I didn't even think to do all those things. I was already impress with the amount of machines and no ones explained to us what was going on beside telling us what to do at the moment. The woman could speak french but spoke to me in German, when she knew I didn't understand and already told her. The doctor never did any attempt to have a conversation with us beside saying in German that he couldn't work like this (out loud and to himself not us directly which put more stress on us) My husband is german so he could understand everything. And like too often when they learn that my husband speaks german they stop talking to me in one of the languages I understand which leaves me clueless of what is going on.
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Old 13.12.2010, 19:29
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Re: Heart murmur in children

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Hello,

We went to the appointment for my daughter's heart tests but it didn't go well at all.

The time they gave us was during her nap time, so she was very tired and sensitive. When we arrived, a lady came to bring us to the room where they perform the ultrasounds and cardiography.

The doctor has is back to us doing some shopping on internet. He didn't say hi, didn't look at us. We took our jackets off and the lady asked me to take off the clothes of the upper body of my daughter. The doctor turn finally to us, said his name shake our hands and began to check my daughter. I think that upset her because she didn't want him to touch her at all. She did a huge scene and the three of us tried to calm her down without success while the doctor was puffing and repeating I can't work like this, I can't work like this...

I told them that maybe to give a bit of time for her to feel safe and secure will help, but apparently it wasn't on his mind. So the tests weren't successful at all.

She was very upset, like I rarely saw her like this before.

The fact that the doctor didn't talk to her first and make her feel safe (he never spoke a word to her) the fact that she was tired and to have a bunch of wired scotch on her was enough to make her lose her temper. Her normal doctor is so nice, he always takes time to talk to her and she reallly likes him. As opposite to that doctor who do works for the children hospital...

Anyway, now apparently we will have to get a new appointment and it will be just in February!

That story is still not done.

Thanks guys for your supports!
Absolutely unacceptable! I agree with what has already been stated by reporting that doctor to his superiors.
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Old 13.12.2010, 19:31
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Re: Heart murmur in children

What crap, sorry to hear this.
Was he able to do any of the exams at all ? (echocardiography)
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  #51  
Old 13.12.2010, 20:22
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Re: Heart murmur in children

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What crap, sorry to hear this.
Was he able to do any of the exams at all ? (echocardiography)
He did the cardiogram I think, with all the wired connected to my daughter's chest. He said that it looks like everything was fine, but she was very upset, crying a lot so I am not sure with the heart beat how that could show something effectively. The echo was impossible because he had to come close to her and she didn't want him to touch her. He also tried to listen to her heartbeat but again, she was so upset and in distress, that didn't work either.

I am confident that she has nothing wrong, but without the proper tests I am still not totally relax.
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Old 13.12.2010, 20:46
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Re: Heart murmur in children

Nil, unbelievable, sometimes I`m just embarrassed to be swiss, maybe because I have experienced both, the ignorance of some of these ego-Dr.`s here in CH and some of the most wonderful Dr. `s (if not all) that I had to visit with my little guy in the US.
Some Dr. have absolutely no bed-side manners!!
I do not think it will help complaining to the superior! The reason being is: My son`s dentist (he is 3.5) slapped my son after he threw a fit because he did not want to be examined. I pulled him away from her, trying not to make a scene, I did not want to scare any of the children. Then in private in one of the exam rooms she admits that she was wrong having hit my son. I demanded an apology letter! In it she denied the whole incident.
OK take a deep breath, make a game plan with hubby, maybe play with your daughter at home Dr. pretend big machines are around you making noise etc., don`t tell her "everything will be fine honey" otherwise she is expecting something will be happening. In the exam room slow down and take charge! Demand to talk to the Dr. first and that he needs to explain everything and that he needs to take a minute to talk to your daughter!! I wish I could be there with you!! I would kick the Dr. ass for you if this happens again!! Oh wait you have hubby with you make him do it..lol..just something to laugh about..
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Old 13.12.2010, 21:12
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Re: Heart murmur in children

Find another cardio-paediatrician (note that they are supposed to be paediatricians specialized in cardiology, hence their name).

The US is a good place to get a check-up (I have some info, if you need any) but the doctors here are also very good. It was just an unhappy situation for you today.

My kiddo acted up a lot too at that age during his appointments. The machinery is impressive. Nevertheless since it's absolutely non-invasive and doesn't hurt in anyway, they do settle.
May I suggest that you prepare her before the next one and explain everything, it really does help.
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Old 13.12.2010, 21:43
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Re: Heart murmur in children

Thanks Girls, it really helps to hear from other people that what happened wasn't just us who found it unacceptable! I am reading all your comments to hubby and he feels better to. Tomorrow we will check with our ped and also with the insurance.

Tonight, my daughter was still pretty shocked by it, she wasn't as happy and energetic as she usually is and she was affraid of the neighbour ()

She will get over it. She was in such distress, the last time she cried like this was when she felt and open her lip badly.

In just a few days, she will have plenty of things to keep her busy with her grand-parents so she'll forget about it.

Gerisherk, I saw Stupid doctors in many different countries. Doing long medical studies doesn't teach them how to act with other human being. Some are good at it and many don't have a clue. They sit on their diploma thinking how clever they are but really.... not! I have my doctor for the pregnancy at the same hospital and she is absolutely awesome! She is sweet, nice and very kind.

Maybe that doctor should change his speciality if he doesn't like kids enough to treat them with respect and curtesy.
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Old 13.12.2010, 22:05
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Re: Heart murmur in children

The cardiologist we used is in Liestal. He speaks English and is good-humored. If you'd like, I can send you his name.

I think babies are great judges of character. If Baby Nil did not like him, I say fire him and go to a different one. Also, bring daddy along as backup for Baby Nil, in case she see a need for another throwdown.
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Old 13.12.2010, 22:16
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Re: Heart murmur in children

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The cardiologist we used is in Liestal. He speaks English and is good-humored. If you'd like, I can send you his name.

I think babies are great judges of character. If Baby Nil did not like him, I say fire him and go to a different one. Also, bring daddy along as backup for Baby Nil, in case she see a need for another throwdown.
Thanks, this is very kind of you. I'll let you know if we didn't see someone in the US.

I am going to teach her how to properly kick some butts when she grows up!

I guess you are right about their judgements. Like I said, she never reacted like this with a stranger. He didn't look nice to us and you, so I can imagine that she felt the same and stronger.
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Old 14.12.2010, 08:48
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Re: Heart murmur in children

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The cardiologist we used is in Liestal. He speaks English and is good-humored. If you'd like, I can send you his name.

I think babies are great judges of character. If Baby Nil did not like him, I say fire him and go to a different one. Also, bring daddy along as backup for Baby Nil, in case she see a need for another throwdown.
I agree children are a great judge of characters
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Old 14.12.2010, 08:52
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Re: Heart murmur in children

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Thanks Girls, it really helps to hear from other people that what happened wasn't just us who found it unacceptable! I am reading all your comments to hubby and he feels better to. Tomorrow we will check with our ped and also with the insurance.

Tonight, my daughter was still pretty shocked by it, she wasn't as happy and energetic as she usually is and she was affraid of the neighbour ()

She will get over it. She was in such distress, the last time she cried like this was when she felt and open her lip badly.

In just a few days, she will have plenty of things to keep her busy with her grand-parents so she'll forget about it.

Gerisherk, I saw Stupid doctors in many different countries. Doing long medical studies doesn't teach them how to act with other human being. Some are good at it and many don't have a clue. They sit on their diploma thinking how clever they are but really.... not! I have my doctor for the pregnancy at the same hospital and she is absolutely awesome! She is sweet, nice and very kind.

Maybe that doctor should change his speciality if he doesn't like kids enough to treat them with respect and curtesy.
Nil, You are absolutely right, I myself had some bad experiences with good Dr. who had bad bed-side-manners! And these Dr. practice all over the world. It`s sad when you get a Dr. with a "God" complex or who can`t get over having a bad day I was lucky with all the Dr. for my little guy except the dentist..doom on her..
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Old 14.12.2010, 16:34
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Re: Heart murmur in children

Hello Nils,

My son now six was detected with a murmur at about two, his condition required an operation (but don't let that worry you) he is fine now.
Anyway I wanted to say we were in Geneva (HUG) under a Doctor Begetti who is a pedaiatric cardiologist and he is excellent, he has a great rapport with kids and our son really likes him.

I would agree with the poster who said the Swiss are careful and check everything. We now go for regular checkups every year with a cardiogram and an electrocardiograph. As he will be seven next year we will do a complete scan to get a proper 3d image.

I am hoping that the fact that your doctor has not said anything is a good sign. Our sons condition (flow of blood through the valve) became quite serious so they did an operation quite quickly. So at least it would seem that your child does not have anything really seroius or they should have already said something.

Incidentally my wife is from Alsace and we got a second opinion from another specialist in Strasbourg if that is of interest. He is well known and collobrates with Begetti. I can send you his details if you like. he is older and very professional although he does not have the same rapport with kids but he is nice. We brought our sons file with tests results which Begetti was quite happy to provide.

Anyway good luck and if you find that you do have anything to do with the aortic valve please do not hesitate to contact me. For the moment do not speculate it will only drive you crazy. wait for the facts to be established otherwise you really are worring over nothing.

Good luck

John
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Old 14.12.2010, 16:50
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Re: Heart murmur in children

Hi, just wanted to let you know that when I was very small I had a heart murmer and then it went, aparently it happens and I have had no further problems
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