Hi ad Caroline - I've done it. But I must say I always find doing those kind of surveys so frustrating as half the time the choices just do not fit any of the things I'd like to say- and I end up picking one, although I know it is just not at all how I feel. But Bonne Chance all the same.

Done!

Very interesting questionnaire. How will we know if something comes of it, or is it just theoretical?

I'd love something like the NHS direct website here... especially now they've changed the symptom checker on the NHS direct website so that you can't use it to get advice when you're not in the UK . It was so useful for those 'is this worth going to the doctor?' moments.

Thanks Odile! Sorry if there were things missing you would have chosen. The questionnaire had been developed over several weeks with lots of different parties involved and I tried to make it as complete as possible...
As I know it often happens that there are answers the researcher doesn't think of I tried to give as often as possible the possibility to add comments, further suggestions and so on in free text. I hope it wasn't too frustrating for you and you had at least the possibility to add some of your comments. And if there are further comments, suggestions and so on you would like to have mentioned, please send them to me by Mail!

Done! Good luck...

Thank you very much, Vlh22!
I hope it won't stay theoretical, but the decision for this has to be done on a much higher level . But let's put it like this: there is hope it won't stay just theoretical!
And concerning NHS direct: In the process of my master thesis nhs direct is a portal I had been analyzing, and was pretty amazed by it, very well done and lots of functionalities...

I hope that this project will become real and that there will have also information about (very) rare illnesses (like the Arnold-Chiari malformation or the syringomyelia).

It's really something important.

Me too, as it is not only difficult to find information on rare illnesses, but also often difficult to find qualitative information...

http://www.unige.ch/presse/archives/...ail-sante.html

Very interesting, thanks.

Will the portal be available to all and free?

Some of the questions were impossible to answer, like was the info accurate, since if you draft a question and get about 50 dif sources, all varying in objectivity, if they are just common sense things or specialists, there is no single answer for this.

We have a couple of threads on medical issues and consulting forum/online support, check it out through the search window.

Interesting survey. Maybe because it's multi lingual, some of the questions in English were not clear. Also, in my experience (and i've worked with some of this stuff in the US) lots of people don't really know what they want until it's presented to them. Still, it's a great start. People use the internet for health info. In fact, I've seen some stats claiming that health info is second after porn in terms of searches, and first among female searchers. Good luck with it.