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  #41  
Old 24.06.2021, 07:52
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Re: Moving to Zurich with disabled child

Dear greenmount, runningdeer, and doropfiz, thank you so much for your helpful replies! As swisspea has also written, we have a lot to think about! And we're definitely taking all of this information very seriously.

Just a quick point:
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Also speech therapy is in the local language. If your child is 3, I'm not sure he is fluent in German?, thus not sure what benefit speech therapy in German will be at that age. In my experience speech therapy in English will not be covered.
In our son's case, speech therapy isn't so much about a specific language as about being able to form sounds and words and being able to communicate at all (verbally or nonverbally). From what the doctors have told us, it is not known whether Pitt Hopkins affects the ability to understand language, but it definitely affects the ability to speak or produce language. Our son hears a lot of French, English, and Dutch, and occasionally some Spanish. If we move to ZH, he'll hear a lot of German as well. :-)

Sincerely,
Nederlandse Amerikaan
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  #42  
Old 24.06.2021, 08:13
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Re: Moving to Zurich with disabled child

Hi NederlandseAmerikaan, This is a difficult decision and I feel for what you're going through. I have some limited experience dealing with a child's learning disability with co-morbidities.

Some doctors are flexible and will work with you to get things covered - write it up how it needs to be written up, etc.... However, in the end, waiting for approval took so long that we gave up and just paid for everything ourselves.

Also, be aware that there can be very long waiting lists for good therapists. And, if you speak German or French all will be well. Many doctors and therapists speak English but DO NOT feel comfortable working in English.

Finally, the overall attitude here (Kanton Aargau) is kind, accepting, and nurturing, BUT also not much experience with differences. The teachers I interacted with did not even know much about any of the common learning disabilities. The law is somewhat clear on accommodations, but you may need a lawyer or other advocate to actually make sure that the accommodations are carried out.

Feel free to PM me for more info.
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  #43  
Old 12.07.2021, 08:47
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Re: Moving to Zurich with disabled child

First of all, zia2001, thank you so much (very belatedly) for your kind and helpful message!

Second, I wanted to provide an update about what I've found, in terms of eligibility for IV.

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In answer to question 3. The correct and precise answer is that to qualify for IV, the child must be born in Switzerland, or a Swiss Permanent resident (C) or citizen. AND there is an age limit for some diagnoses - eg. condition must be diagnosed before a particular age...
The exact criteria for eligibility for IV are (as are many things!) even more complicated than that. An excellent resource I have found is the website of the Pro Infirmis organization, which is an advocacy organization for people with disabilities, and which has extensive legal advice about the Swiss insurance system: https://www.proinfirmis.ch/rechtsratgeber.html (the legal info is available in German, French, and Italian). I'm still not clear on the eligibility criteria for 'medizinische Massnahmen über die IV', but for an IV program like Hilflosenentschädigung for children, the exact eligibility criteria can be found at https://www.proinfirmis.ch/behindert...jaehrigen.html A child with a congenital disability is eligible for Hilflosenentschädigung if
(a) they have Swiss citizenship, OR
(b) they are a child of a EU/EFTA citizen who is subject to the EU-CH Agreement on the Free Movement of Persons, OR
(c) they are a citizen of a country with which Switzerland has a social security agreement, though this depends on the terms of the agreement.

Regarding point (c), as sdtrex (the OP) wrote, 'This will be different for people from different countries. It's complicated.' And she's right. For an overview of the main social security agreements that CH has entered into, see https://www.bsv.admin.ch/bsv/en/home...abkommen0.html Here, one will find that the citizens of some countries (like Australia or Canada) have parity with Swiss citizens, when it comes to the question of whether Australian or Canadian kids born with disabilities in Australia/Canada qualify for IV. The social security agreements with other countries (like the one with the US) contain no provisions that give children born disabled in the US equal treatment to children born disabled in CH.

In sum, we are pretty certain that our son will not be eligible for benefits from IV. (1) Although he's an EU citizen, he won't be in CH as the child of an EU citizen subject to the AFMP (but rather as the child of a non-EU citizen who has a job in CH). And (2) although he's a US citizen, and the US has a social security agreement with CH, the provisions of this agreement do not make him eligible for IV.

And finally, despite all that, I also wanted to let you know that my wife has accepted the job offer, and we do plan to move to Switzerland in a few months. We're extremely grateful for all the people who have provided input on this thread -- especially the folks who have warned us about how hard it will be to get services for our son. I really mean that. We're glad we're going into this with eyes wide open, and it would be far worse to move to CH, only to discover after we arrived that our son wouldn't get the services we thought he would get. We know this is going to be really hard for us, and we're going to do our best to meet his needs. We will definitely do as sdtrex suggested and enlist the aid of organizations like Pro Infirmis (see above), https://www.procap.ch/ (which provides legal aid to persons with disabilities), and http://www.pitthopkins.ch/ (for connecting with other families and for advice). And if we can't meet our son's needs in CH, then we will leave. But we want to give this opportunity a chance, and we don't want to give up without trying. :-) We're simultaneously full of trepidation and full of excitement for this new adventure. :-)

Again, thank you.

Sincerely,
Nederlandse Amerikaan
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  #44  
Old 12.07.2021, 13:31
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Re: Moving to Zurich with disabled child

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In sum, we are pretty certain that our son will not be eligible for benefits from IV. ....

And finally, despite all that, I also wanted to let you know that my wife has accepted the job offer, and we do plan to move to Switzerland in a few months.
Just wanted to say that's a very brave decision to come here with the view your child is not covered by IV and will need lots of therapies paid out of pocket. So best of luck.

Further to what you wrote above, if IV would cover the child of parent per the free movement accord, the next best thing would seem to be that you as the EU person get employment here; that might solve the IV issue. But it will still take time to get a job and get through all the IV red tape.
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  #45  
Old 19.07.2021, 05:35
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Re: Moving to Zurich with disabled child

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Just wanted to say that's a very brave decision to come here with the view your child is not covered by IV and will need lots of therapies paid out of pocket. So best of luck.
Thank you so much, runningdeer! We really don't know if what we're doing is brave, or simply foolhardy. :-) But we want to try to make it work, and we appreciate all the help we've been getting on this forum!!!

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Further to what you wrote above, if IV would cover the child of parent per the free movement accord, the next best thing would seem to be that you as the EU person get employment here; that might solve the IV issue. But it will still take time to get a job and get through all the IV red tape.
Yes, we've thought of this too. It's an excellent incentive for me to finish my dissertation, so I can see whether I can get a job in CH. Unfortunately, my PhD is in the humanities, so it's probably not going to help me in getting a Swiss job! But any job I could get that would qualify our son for services through IV would be great.

Sincerely,
Nederlandse Amerikaan
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  #46  
Old 15.06.2022, 22:56
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Re: Moving to Zurich with disabled child

Sorry for bumping an old theme, but I have almost exact situation as NederlandseAmerikaan with a good offer in Zurich and disabled autistic son.


Here at home, I can provide about 20 hours aba-therapy and some other therapies for my son. And I have no idea what I'll be able to provide him in Zurich




NederlandseAmerikaan could you please share your experience if possible?


Did you find any ABA-providers? How much does it cost? Did your son land a school, special or normal?


I will be very grateful for any information
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  #47  
Old 16.06.2022, 08:48
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Re: Moving to Zurich with disabled child

OK, first of all welcome to the forum!
Your child will have to be assessed again by the Swiss system in order to receive any kind of therapy, so whatever applied in one case it is not necessarily valid for everyone else. Depending on the degree of the condition, he could be integrated into the general school system or not.
If you think your son has all the support he needs now, maybe you will be disappointed a bit about how things go here (hint: slow). Not because of the lack of support because that is really not the case, but because in Switzerland things click in a different way. I also believe you should talk about this move with his current therapists too. Good luck and I hope you'll get more detailed and better answers than mine.

Last edited by greenmount; 16.06.2022 at 09:04.
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  #48  
Old 16.06.2022, 09:06
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Re: Moving to Zurich with disabled child

For ABA therapy the cost in Zurich could be 25-40chf an hour..... and it's not common here.
I would expect that if he is using that much therapy that he is non verbal and mostly not independent. In that case he is unlikely to go to a regular school - he would be allocated to a special ('sonderschule') and very likely isolated. Whether this is a positive or negative experience I do not know. Also, the 'sonderschule' would be in German, and unlikely to have English support. That could be quite overwhelming for a child who has reasonably good language comprehension but struggles with expression.



As mentioned in the thread, it's unlikely that the 1:1 therapy will be covered by disability insurance if you are from the USA. You need to consider that very carefully if you already have either capacity to pay or insurance in the USA that covers.
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